Department of Anesthesia and Pain, The Hospital for Sick Children, Toronto, Canada.
Clin J Pain. 2013 Jul;29(7):600-12. doi: 10.1097/AJP.0b013e31826dce65.
To qualitatively explore the information and service needs of young adults (YAs) with chronic pain to inform the development of a web-based chronic pain self-management program.
A convenience sample of YAs (n=17; aged 18 to 29 y) with chronic pain was recruited from 2 adult tertiary care multidisciplinary chronic pain clinics in Ontario. Interdisciplinary health care professionals who had worked in chronic pain for at least 1 year were also recruited from these sites. Five audiotaped focus groups were conducted, 3 for YAs and 2 for health care professionals. Transcribed data were organized into categories that reflected emerging themes.
Findings uncovered 4 major themes: (1) pain impact, (2) pain management strategies, (3) barriers to care, and (4) service delivery recommendations. Subthemes were found under each major theme. Pain had an impact on social and emotional realms and role functioning, physical functioning, and future vocational and life goals. Pain management strategies were comprised of psychological, physical, and pharmacological approaches and development of support systems. Barriers to care were revealed at the patient, health care system, and societal levels. Finally, service delivery recommendations were divided into 2 subthemes pertaining to improved services and Internet-based programs.
Participants unanimously felt that a web-based program would be an acceptable means to help improve access to services and meet the need for more information about chronic pain, strategies to manage pain symptoms, and social support to address the unique developmental needs of YAs.
定性探讨慢性疼痛青年患者的信息和服务需求，为开发基于网络的慢性疼痛自我管理计划提供信息。
从安大略省 2 家成人三级保健多学科慢性疼痛诊所招募了 17 名患有慢性疼痛的青年患者（18-29 岁）作为方便样本。还从这些地点招募了至少从事慢性疼痛工作 1 年的跨学科卫生保健专业人员。对青年患者和卫生保健专业人员分别进行了 5 次录音焦点小组访谈。转录数据被组织成反映新出现主题的类别。
研究结果揭示了 4 个主要主题：（1）疼痛影响，（2）疼痛管理策略，（3）治疗障碍，和（4）服务提供建议。每个主要主题下都有子主题。疼痛对社会和情感领域以及角色功能、身体功能以及未来职业和生活目标产生了影响。疼痛管理策略包括心理、身体和药物治疗方法以及支持系统的发展。治疗障碍存在于患者、医疗保健系统和社会层面。最后，服务提供建议分为 2 个子主题，涉及改善服务和基于互联网的计划。
参与者一致认为，基于网络的计划将是一种可以接受的手段，可以帮助改善服务的获取，并满足对更多关于慢性疼痛的信息、管理疼痛症状的策略以及社会支持的需求，以满足青年患者的独特发展需求。
