Pelletier Jean-François, Pouliot-Morneau Denis, Houle Janie, Bordeleau Julie, Laroche Sébastien, Rowe Michael
Département de psychiatrie, Université de Montréal ; Centre de recherche de l'Institut universitaire en santé mentale de Montréal/Centre intégré universitaire de santé et de services sociaux de l'Est-de-l'Île-de-Montréal ; Yale School of Medicine/Program for Recovery & Community Health.
Centre de recherche de l'Institut universitaire en santé mentale de Montréal/Centre intégré universitaire de santé et de services sociaux de l'Est-de-l'Île-de-Montréal ; Département de sociologie, Université du Québec à Montréal.
Sante Ment Que. 2017 Spring;42(1):205-222.
Objectives The Global Model of Public Mental Health is "global" not only in the sense of having an international perspective, but in regarding service users as actors at all levels of public mental health exerting collective and organized influence on the social determinants of health, in addition to being recipients of care. Having access to appropriate health and mental health care when needed is a fundamental human right. Having a say over the manner in which care is provided, including partnership in decision making in care planning and ongoing care, has gained increasing support among recipients and providers of care. Over the past few decades in the Canadian province of Quebec, patient participation and partnership in decision-making has been promoted through successive Mental Health Action Plans (MHAP) and other policies. In these documents, participation and partnership are associated with the exercise of citizenship and the promotion of service users' rights, including the rights to participate in one's own care. In this article, using the case example of a citizenship-oriented intervention, namely the Projet citoyen, we discuss the results to a new measure of citizenship, which was developed from a service users' perspective.Methods Employing a mixed methods approach, two types of data were collected from users of mental health care. Quantitative data were generated from administration of a 23-item measure of citizenship with service users in the province of Quebec (N=802), and qualitative data were collected from four focus groups with another sample of 18 service users. They were presented with results from the administration of the measure, and asked to comment on them in regard to their own experience of citizenship.Results Among the five dimensions of the measure of citizenship, participants scored lowest on the 'involvement in the community' dimension, and higher on the other dimensions of 'basic needs,' 'respect by others,' 'self-determination,' and 'access to services.' In focus groups, participants said that there is still prejudice in society and discrimination towards people with mental illnesses that limit their right to participate in public debate and mental health programming. Public health interventions at this level may help to change attitudes and social representations, as they are inclusive of persons with lived experience of mental illness. Public discussion of citizenship issues in relation to mental health also represent an opportunity for participants to confront existing problems, as a first step toward collective action.Conclusion People's lived experience of regaining a sense of citizenship and of belonging to their local neighborhoods and communities, including the scientific micro-community, can help to foster an evolution of public health from disease management to health promotion and community inclusion. More research is needed to compare the sense of citizenship to the rest of the population and to see if specific interventions can have an enduring impact (e.g.: pre/post design).
目标 全球精神卫生模式的“全球”意义不仅在于具有国际视野,还在于将服务使用者视为精神卫生各层面的参与者,他们不仅是护理接受者,还能对健康的社会决定因素施加集体和有组织的影响。在需要时获得适当的卫生和精神卫生护理是一项基本人权。对于护理提供方式拥有发言权,包括在护理计划和持续护理的决策过程中建立伙伴关系,这在护理接受者和提供者中得到了越来越多的支持。在过去几十年里,加拿大魁北克省通过一系列精神卫生行动计划(MHAP)和其他政策推动了患者参与决策并建立伙伴关系。在这些文件中,参与和伙伴关系与公民权的行使以及服务使用者权利的促进相关联,包括参与自身护理的权利。在本文中,我们以一个面向公民权的干预措施即公民项目为例,探讨从服务使用者角度开发的一种新的公民权衡量标准的结果。
方法 采用混合方法,从精神卫生护理使用者那里收集了两类数据。定量数据来自对魁北克省802名服务使用者进行的一项包含23个项目的公民权衡量标准的管理,定性数据来自与另外18名服务使用者样本组成的四个焦点小组。向他们展示了该衡量标准管理的结果,并要求他们就自身的公民权体验对结果发表评论。
结果 在公民权衡量标准的五个维度中,参与者在“社区参与”维度得分最低,在“基本需求”“他人尊重”“自主决定权”和“服务获取”等其他维度得分较高。在焦点小组中,参与者表示社会中仍然存在对精神疾病患者的偏见和歧视,这限制了他们参与公共辩论和精神卫生规划的权利。这个层面的公共卫生干预措施可能有助于改变态度和社会观念,因为它们将有精神疾病生活经历的人纳入其中。关于精神卫生方面公民权问题的公开讨论也为参与者提供了一个面对现有问题的机会,作为迈向集体行动的第一步。
结论 人们重新获得公民权意识以及归属当地社区(包括科学微观社区)的生活经历,有助于推动公共卫生从疾病管理向健康促进和社区融合的转变。需要更多研究来比较公民权意识与其他人群的差异,以及查看特定干预措施是否能产生持久影响(例如:前后设计)。