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存活监测:HIV 阳性孕妇和母亲应对医疗和社会监测的情况。

Surviving Surveillance: How Pregnant Women and Mothers Living With HIV Respond to Medical and Social Surveillance.

机构信息

1 McMaster University, Hamilton, Ontario, Canada.

2 St. Michael's Hospital, Toronto, Ontario, Canada.

出版信息

Qual Health Res. 2017 Dec;27(14):2088-2099. doi: 10.1177/1049732317725219. Epub 2017 Aug 17.

DOI:10.1177/1049732317725219
PMID:28814159
Abstract

Pregnant women and mothers living with HIV are under surveillance of service providers, family members, and the community at large. Surveillance occurs throughout the medical management of their HIV during pregnancy, preventing HIV transmission to their baby, infant feeding practices, and as part of assessments related to their ability to mother. Enacted and anticipatory HIV-related stigma can exacerbate the negative impact that being under surveillance has on mothers living with HIV as they move through their pregnancy, birthing, and mothering experiences. In response, women living with HIV find ways to manage their experiences of surveillance through engaging in acts of distancing, planning, and resisting at different points in time, and sometimes enacting all three practices at once. Positioning the narratives of pregnant women and mothers living with HIV in relation to their experiences of surveillance illuminates the relationship between the surveillance of mothers living with HIV and HIV-related stigma.

摘要

孕妇和感染艾滋病毒的母亲受到服务提供者、家庭成员和整个社区的监测。监测贯穿于她们怀孕期间的艾滋病毒医疗管理,以防止艾滋病毒传染给婴儿、婴儿喂养方式以及与母亲生育能力评估相关的部分。已经实施和预期的与艾滋病毒相关的耻辱感可能会加剧正在接受监测的感染艾滋病毒的母亲在怀孕、分娩和育儿经历中所面临的负面影响。为此,感染艾滋病毒的妇女通过在不同时间点采取回避、计划和抵制的方式来应对监测,有时甚至同时采取这三种方式来管理自己的监测经历。将感染艾滋病毒的孕妇和母亲的叙述与其监测经历联系起来,可以揭示出对感染艾滋病毒的母亲的监测与艾滋病毒相关耻辱感之间的关系。

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Stakeholder engagement is essential to maximise the impact of research on infant feeding in the context of HIV.
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