Kozlov Elissa, McDarby Meghan, Reid M Carrington, Carpenter Brian D
1 Department of Medicine, Weill Cornell Medical College, New York, NY, USA.
2 Department of Psychology, Washington University in St Louis, St Louis, MO, USA.
Am J Hosp Palliat Care. 2018 Apr;35(4):647-651. doi: 10.1177/1049909117725725. Epub 2017 Aug 18.
To identify what laypersons know about palliative care using the Palliative Care Knowledge Scale (PaCKS). A secondary aim was to establish preliminary normative data for the PaCKS.
A sample of 301 adults were recruited via Amazon's Mechanical Turk database. Participants were administered the PaCKS along with a demographic questionnaire.
The mean score on the 13-item PaCKS was 5.25 (standard deviation = 4.77, range: 0-13), the median was 5, and the mode was 0, with a significant proportion of participants selecting "I don't know" for every item. Women scored significantly higher than men, and 45- to 54- and 55- to 64-year-olds scoring highest. The PaCKS was also significantly positively correlated with education.
Broadly, laypersons lack knowledge about some key aspects of palliative care, though palliative care knowledge is highly variable across individuals and some groups. Targeted educational interventions are essential to improve knowledge of palliative care in order to increase access to this type of life-enhancing, supportive service.
使用姑息治疗知识量表(PaCKS)来确定外行人对姑息治疗的了解程度。次要目的是为PaCKS建立初步的常模数据。
通过亚马逊的Mechanical Turk数据库招募了301名成年人作为样本。参与者接受了PaCKS测试以及一份人口统计学问卷调查。
13项PaCKS的平均得分是5.25分(标准差=4.77,范围:0 - 13),中位数是5,众数是0,相当一部分参与者对每个项目都选择了“我不知道”。女性得分显著高于男性,45至54岁以及55至64岁的人得分最高。PaCKS与教育程度也呈显著正相关。
总体而言,外行人对姑息治疗的一些关键方面缺乏了解,尽管姑息治疗知识在个体和某些群体中差异很大。有针对性的教育干预对于提高姑息治疗知识至关重要,以便增加获得这种改善生活、提供支持的服务的机会。