Shalev Ariel, Phongtankuel Veerawat, Kozlov Elissa, Shen Megan Johnson, Adelman Ronald D, Reid M C
1 Department of Medicine, Weill Cornell Medicine, New York, NY, USA.
Am J Hosp Palliat Care. 2018 Mar;35(3):431-439. doi: 10.1177/1049909117715215. Epub 2017 Jun 20.
Despite the documented benefits of palliative and hospice care on improving patients' quality of life, these services remain underutilized. Multiple factors limit the utilization of these services, including patients' and caregivers' lack of knowledge and misperceptions.
To examine palliative and hospice care awareness, misperceptions, and receptivity among community-dwelling adults.
Cross-sectional study.
New York State residents ≥18 years old who participated in the 2016 Empire State Poll.
Palliative and hospice care awareness, misperceptions, and receptivity.
Of the 800 participants, 664 (83%) and 216 (27%) provided a definition of hospice care and palliative care, respectively. Of those who defined hospice care, 399 (60%) associated it with end-of-life care, 89 (13.4%) mentioned it was comfort care, and 35 (5.3%) reported hospice care provides care to patients and families. Of those who defined palliative care (n = 216), 57 (26.4%) mentioned it provided symptom management to patients, 47 (21.9%) stated it was comfort care, and 19 (8.8%) reported it was applicable in any course of an illness. Of those who defined hospice or palliative care, 248 (37.3%) had a misperception about hospice care and 115 (53.2%) had a misperception about palliative care.
Most community-dwelling adults did not mention the major components of palliative and hospice care in their definitions, implying a low level of awareness of these services, and misinformation is common among community-dwelling adults. Palliative and hospice care education initiatives are needed to both increase awareness of and reduce misperceptions about these services.
尽管姑息治疗和临终关怀服务对提高患者生活质量的益处已有记载，但这些服务的利用率仍然很低。多种因素限制了这些服务的使用，包括患者和护理人员缺乏相关知识以及存在误解。
调查居家成年人对姑息治疗和临终关怀服务的知晓情况、误解以及接受程度。
横断面研究。
参与2016年纽约州民意调查的18岁及以上纽约州居民。
姑息治疗和临终关怀服务的知晓情况、误解以及接受程度。
在800名参与者中，分别有664人（83%）和216人（27%）对临终关怀服务和姑息治疗给出了定义。在给出临终关怀服务定义的人中，399人（60%）将其与临终护理联系起来，89人（13.4%）提到这是舒适护理，35人（5.3%）表示临终关怀服务为患者及其家人提供护理。在给出姑息治疗定义的人（n = 216）中，57人（26.4%）提到它为患者提供症状管理，47人（21.9%）表示这是舒适护理，19人（8.8%）报告它适用于疾病的任何阶段。在给出临终关怀或姑息治疗定义的人中，248人（37.3%）对临终关怀服务存在误解，115人（53.2%）对姑息治疗存在误解。
大多数居家成年人在定义中未提及姑息治疗和临终关怀服务的主要内容，这意味着对这些服务的知晓程度较低，而且误解在居家成年人中很常见。需要开展姑息治疗和临终关怀服务教育活动，以提高对这些服务的认识并减少误解。
