O'Dwyer Siobhan T, Moyle Wendy, Taylor Tara, Creese Jennifer, Zimmer-Gembeck Melanie
Medical School, University of Exeter, Exeter EX1 SLU, UK.
Menzies Health Institute Queensland, Griffith University, Nathan QLD 4111, Australia.
Behav Sci (Basel). 2017 Aug 21;7(3):57. doi: 10.3390/bs7030057.
There is a growing body of research on resilience in family carers of people with dementia, but carers' voices are noticeably absent from it. The aim of this study was to explore carers' definitions of resilience and their opinions on the factors associated with resilience. Twenty-one in-depth interviews were conducted in Australia with people who were currently, or had previously been, caring for a family member with dementia. Transcripts were analysed thematically and three themes emerged: the presence of resilience, the path to resilience, and characteristics of the resilient carer. Although carers struggled to define resilience, the vast majority considered themselves resilient. Carers identified a range of traits, values, environments, resources, and behaviours associated with resilience, but there was no consensus on the relative importance or causal nature of these factors. Carers also considered resilience to be domain- and context-specific, but did not agree on whether resilience was a trait or a process. These findings highlight both the importance of including carers' voices in resilience research and the limitations of the extant literature. There is much to be done to develop a field of carer resilience research that is theoretically sound, methodologically rigorous, and reflects the lived experience of carers. A model is provided to prompt future research.
关于痴呆症患者家庭照料者复原力的研究越来越多，但其中明显缺少照料者的声音。本研究的目的是探讨照料者对复原力的定义以及他们对与复原力相关因素的看法。在澳大利亚，对21名目前或曾经照料患有痴呆症家庭成员的人进行了深入访谈。对访谈记录进行了主题分析，出现了三个主题：复原力的存在、复原力之路以及有复原力的照料者的特征。尽管照料者难以给复原力下定义，但绝大多数人认为自己有复原力。照料者确定了一系列与复原力相关的特质、价值观、环境、资源和行为，但对于这些因素的相对重要性或因果性质没有达成共识。照料者还认为复原力是特定领域和情境的，但对于复原力是一种特质还是一个过程没有达成一致意见。这些发现既凸显了在复原力研究中纳入照料者声音的重要性，也凸显了现有文献的局限性。要建立一个理论上合理、方法上严谨且反映照料者生活经历的照料者复原力研究领域，还有很多工作要做。提供了一个模型以推动未来的研究。
