Emmet Margaret, Stein Quinn, Thorpe Erin, Campion MaryAnn
Boston University School of Medicine, Boston, MA, USA.
Massachusetts General Hospital, 55 Fruit Street Yawkey 10B, Boston, MA, 02180, USA.
J Genet Couns. 2018 Feb;27(1):140-154. doi: 10.1007/s10897-017-0131-6. Epub 2017 Aug 22.
In-person genetic counseling clinics in rural areas are likely to improve access to genetic counseling in underserved regions, but studies have not previously examined how these clinics function or described the experience of practicing in a rural setting. The present mixed-methods study explored the professional experiences of clinical genetic counselors who practice in rural areas, including the benefits and challenges of practicing in these settings and the counselors' motivations for doing so. The authors surveyed 20 genetic counselors who self-reported working in rural areas and conducted interviews with six individuals whose workplaces were confirmed as rural per RUCA code. Major obstacles to the provision of genetics services in rural areas included travel distance and low referral rates due to lack of awareness or skepticism. Facilitating factors included relying on resources such as professional networks and prioritizing outreach and education. Participants reported high professional satisfaction and were motivated to work in rural areas by personal experiences and qualities of the job such as being a generalist and having greater professional autonomy. These data demonstrate the feasibility of practicing in rural settings and suggest that in-person rural genetic counseling clinics may complement other strategies such as alternative service delivery models in increasing access for rural residents.
农村地区的面对面遗传咨询诊所可能会改善服务不足地区获得遗传咨询的机会,但此前的研究尚未考察这些诊所的运作方式,也未描述在农村环境中执业的经历。本混合方法研究探讨了在农村地区执业的临床遗传咨询师的专业经历,包括在这些环境中执业的益处和挑战以及咨询师这样做的动机。作者对20名自称在农村地区工作的遗传咨询师进行了调查,并对6名根据农村城市和城镇代码其工作场所被确认为农村的个人进行了访谈。农村地区提供遗传学服务的主要障碍包括出行距离以及由于缺乏认识或怀疑导致的低转诊率。促进因素包括依靠专业网络等资源以及将外展和教育作为优先事项。参与者报告了较高的职业满意度,个人经历以及工作的特质(如成为多面手和拥有更大的职业自主权)促使他们在农村地区工作。这些数据证明了在农村环境中执业的可行性,并表明农村面对面遗传咨询诊所可能会补充其他策略,如替代服务提供模式,以增加农村居民获得服务的机会。