Department of Psychological Medicine, University of Auckland.
Department of Clinical Psychology and Psychotherapy, University of Marburg.
Health Psychol. 2018 Jan;37(1):37-41. doi: 10.1037/hea0000548. Epub 2017 Aug 24.
Inaccurate lay views of an illness can lead to the adoption of unhelpful coping strategies and treatments. Gout is an example of an illness where the popular view of the condition conflicts with a modern understanding of the illness by overemphasizing the role of diet and alcohol in the development and management of the disease. In this study we investigated the effect of renaming gout as urate crystal arthritis on the perceptions of the illness.
One-hundred and 89 supermarket shoppers participated in a study examining the perceptions of different types of arthritis. Participants completed a questionnaire that either used the term "urate crystal arthritis" (UCA) or "gout" for the label and a description of the disease. Participants rated likely causal factors, illness perceptions and the usefulness of various management strategies.
Gout was perceived as being more likely caused by the patient's own behavior through poor diet and overconsumption of alcohol, while UCA was attributed to aging. The UCA-labeled illness was also viewed as a more chronic and serious condition, while the gout-labeled illness was seen as being more socially embarrassing and more under the patient's personal control. Management for the gout-labeled illness centered on dietary interventions, while the UCA-labeled illness was perceived as requiring long-term medication.
Changing an illness label can have a significant effect on causal beliefs, illness perceptions, and management strategies. Changing illness labels may be useful where the lay perceptions of an illness are not aligned with a current understanding of the condition. (PsycINFO Database Record
不准确的疾病民间观点可能导致采用无益的应对策略和治疗方法。痛风就是一个例子,人们普遍认为这种疾病与现代对疾病的理解相冲突,过分强调饮食和酒精在疾病的发展和管理中的作用。在这项研究中,我们调查了将痛风重新命名为尿酸盐晶体关节炎对疾病认知的影响。
189 名超市购物者参与了一项研究,调查他们对不同类型关节炎的认知。参与者完成了一份问卷,问卷中使用了“尿酸盐晶体关节炎”(UCA)或“痛风”这两个术语来表示疾病标签和疾病描述。参与者对可能的病因、疾病认知和各种管理策略的有用性进行了评估。
痛风被认为更可能是由于患者自身的行为,如不良饮食和过度饮酒引起的,而 UCA 则归因于衰老。UCA 标签的疾病也被认为是一种更慢性和严重的疾病,而痛风标签的疾病则被认为更令人尴尬,更受患者个人控制。针对痛风标签的疾病的管理集中在饮食干预上,而 UCA 标签的疾病则被认为需要长期药物治疗。
改变疾病标签可以对病因信念、疾病认知和管理策略产生重大影响。在疾病的民间认知与当前对疾病的理解不一致的情况下,改变疾病标签可能是有用的。