从患者角度理解巴雷特柱状上皮化生食管：对患者进行半结构化访谈的定性分析
Understanding Barrett's columnar lined oesophagus from the patients' perspective: qualitative analysis of semistructured interviews with patients.
作者信息
Griffiths Helen, Davies Ruth
机构信息
Department of Gastroenterology, Hereford Hospitals, Hereford, UK.
Swansea University, Swansea, UK.
出版信息
Frontline Gastroenterol. 2011 Jul;2(3):168-175. doi: 10.1136/fg.2010.004077. Epub 2011 Mar 29.
OBJECTIVES
To explore patients' views and perspectives on their experience of living with Barrett's columnar lined oesophagus (CLO) and being part of an endoscopic surveillance programme.
DESIGN
Qualitative semistructured interviews.
SETTING
District General Hospital.
SUBJECTS
22 men with diagnosis of Barrett's CLO between the ages of 50 and 70 years.
RESULTS
All subjects had received some information about Barrett's CLO and had a heightened awareness of the cancer risk. However, many had misinterpreted or poorly assimilated the information and overall health literacy levels were low. From their stories a 'Model of Uncertainty' in Barrett's surveillance was developed as a focus for healthcare professionals to ensure that the service users' perspective is considered in future service development.
CONCLUSION
Patients' assimilation of information should not be assumed by healthcare professionals but rather should be verified for individual patients. The model developed highlights the factors found to influence patients' knowledge and understanding of Barrett's CLO.
目的
探讨患者对其患有巴雷特柱状上皮化生食管（CLO）的生活经历以及作为内镜监测项目一部分的看法和观点。
设计
定性半结构式访谈。
地点
区综合医院。
研究对象
22名年龄在50至70岁之间被诊断为巴雷特CLO的男性。
结果
所有研究对象都已获得一些关于巴雷特CLO的信息，并且对癌症风险的认识有所提高。然而，许多人对这些信息存在误解或理解不充分，整体健康素养水平较低。从他们的故事中，形成了一个巴雷特监测中的“不确定性模型”，作为医疗保健专业人员的关注重点，以确保在未来的服务发展中考虑服务使用者的观点。
结论
医疗保健专业人员不应假定患者对信息的理解情况，而应针对个体患者进行核实。所开发的模型突出了影响患者对巴雷特CLO的知识和理解的因素。
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