Brooten Dorothy, Youngblut JoAnne M, Roche Rosa M
Nicole Wertheim College of Nursing & Health Sciences, Florida International University, 11200 SW 8th St., AHC3, Rm 221, Miami, FL 33199.
J Hosp Palliat Nurs. 2017 Jun;19(3):247-255. doi: 10.1097/NJH.0000000000000336.
This qualitative study used semi-structured interviews to describe adolescents' responses at 7 and 13 months to siblings' NICU/PICU/ED death. At 7 months, adolescents were asked about events around the sibling's death; at 7 and 13 months, about concerns/fears, feelings, and life changes. Seventeen adolescents participated (13-18 years; M=15); 65% Black, 24% Hispanic, 11% White. Themes included death circumstances, burial events, thinking about the deceased sibling, fears, and life changes. Adolescents reported shock and disbelief that the sibling died; 80% knew the reason for the death; many had difficulty getting through burials; all thought about the sibling. From 7 - 13 months fears increased including losing someone and thoughts of dying. Adolescents reported more changes in family life and greater life changes in them (more considerate, mature) by 13 months; some felt friends abandoned them after the sibling's death. Girls had more fears and changes in family life and themselves. Adolescent's responses to sibling death may not be visually apparent. One recommendation from this study is to ask adolescents how they are doing separately from parents since adolescents may hide feelings to protect their parents, especially their mothers. Older adolescents (14-18 years) and girls may have more difficulty after sibling death.
这项定性研究采用半结构化访谈来描述青少年在兄弟姐妹于新生儿重症监护室/儿科重症监护室/急诊科死亡7个月和13个月时的反应。在7个月时,询问青少年有关兄弟姐妹死亡前后的事件;在7个月和13个月时,询问他们的担忧/恐惧、感受和生活变化。17名青少年参与了研究(年龄在13 - 18岁之间;平均年龄为15岁);65%为黑人,24%为西班牙裔,11%为白人。主题包括死亡情况、葬礼事件、对已故兄弟姐妹的思念、恐惧和生活变化。青少年报告称对兄弟姐妹的死亡感到震惊和难以置信;80%知道死亡原因;许多人在葬礼过程中感到困难;所有人都思念着兄弟姐妹。从7个月到13个月,恐惧增加,包括失去某人以及对死亡的想法。青少年报告称家庭生活变化更多,到13个月时他们自身也有更大的生活变化(更加体贴、成熟);一些人觉得兄弟姐妹死后朋友抛弃了他们。女孩在家庭生活和自身方面有更多的恐惧和变化。青少年对兄弟姐妹死亡的反应可能在表面上并不明显。这项研究的一项建议是单独询问青少年的情况,因为青少年可能会为了保护父母,尤其是母亲而隐藏自己的感受。年龄较大的青少年(14 - 18岁)和女孩在兄弟姐妹死亡后可能会有更多困难。