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Reflecting the 'human nature' of IVF embryos: disappearing women in ethics, law, and fertility practice.反映体外受精胚胎的“人性”:伦理学、法律及生育实践中消失的女性
J Law Biosci. 2016 Nov 23;4(1):70-93. doi: 10.1093/jlb/lsw058. eCollection 2017 Apr.
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反映体外受精胚胎的“人性”:伦理学、法律及生育实践中消失的女性

Reflecting the 'human nature' of IVF embryos: disappearing women in ethics, law, and fertility practice.

作者信息

Millbank Jenni

机构信息

Faculty of Law, University of Technology Sydney, Broadway, NSW 2007, Australia.

出版信息

J Law Biosci. 2016 Nov 23;4(1):70-93. doi: 10.1093/jlb/lsw058. eCollection 2017 Apr.

DOI:10.1093/jlb/lsw058
PMID:28852558
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC5570696/
Abstract

Many laws and ethical documents instruct us that disembodied embryos created through IVF processes are not mere tissue; they are 'widely regarded' as unique objects of serious moral consideration. Even in jurisdictions which disavow any overt characterization of embryonic personhood, the embryo, by virtue of its uniqueness and orientation toward future development, is said to have a 'special status' or command 'respect'. The woman whose desire for a child or children created this embryo, and who inhabits the body to whom it may one day be returned, is an omission or at best an afterthought in such frameworks. This paper engages in an historical analysis of this conundrum in the Australian context. It argues that the institutional structure of foundational ethics bodies (made up of a mandated mix of scientific and religious representation, in practice dominated by men, and absent any requirement of the participation of women patients) has produced the embryo as an object of ideological compromise: 'not mere cells' and 'not life', but a poorly bounded and endlessly contested something-in-between. The paper then turns to engage with the narratives of a selection of women patients about their sense of connectedness to their stored or discarded embryos, drawn from a larger study on decision making concerning patient's experience of decision making about IVF embryos. I draw on these narratives to ask how we could reorient law and policy toward the concerns, needs and desires of such women.

摘要

许多法律和伦理文件告知我们,通过体外受精过程产生的脱离人体的胚胎并非仅仅是组织;它们“被广泛视为”是具有重大道德考量意义的独特实体。即便在那些不承认胚胎具有任何明确人格特征的司法管辖区,胚胎因其独特性以及对未来发育的指向性,也被认为具有“特殊地位”或值得“尊重”。而那位因渴望生育而孕育了这个胚胎、且其身体终有一天可能接纳该胚胎的女性,在这样的框架中却被忽视了,充其量只是事后才被想起。本文对澳大利亚背景下的这一难题展开历史分析。文章认为,基础伦理机构的制度结构(由法定的科学与宗教代表混合组成,实际上由男性主导,且没有女性患者参与的任何要求)将胚胎塑造成为一种意识形态妥协的对象:“并非仅仅是细胞”且“并非生命”,而是一种界限模糊且争议不断的介于两者之间的存在。接着,本文转向研究一部分女性患者关于她们与所储存或丢弃胚胎的联系感的叙述,这些叙述取自一项关于体外受精胚胎患者决策经历的更大规模研究。我借助这些叙述来探讨我们如何能够使法律和政策重新关注此类女性的关切、需求和愿望。