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用生长激素治疗身材矮小的儿童?潜在社会文化因素的伦理考量。

Medicalising short children with growth hormone? Ethical considerations of the underlying sociocultural aspects.

作者信息

Murano Maria Cristina

机构信息

Department of Culture and Communication, Linköping University, 581 83, Linköping, Sweden.

出版信息

Med Health Care Philos. 2018 Jun;21(2):243-253. doi: 10.1007/s11019-017-9798-6.

Abstract

In 2003, the Food and Drug Administration approved the use of growth hormone treatment for idiopathic short stature children, i.e. children shorter than average due to an unknown medical cause. Given the absence of any pathological conditions, this decision has been contested as a case of medicalisation. The aim of this paper is to broaden the debate over the reasons for and against the treatment, to include considerations of the sociocultural phenomenon of the medicalisation of short stature, by means of a critical understanding of the concept of medicalisation. After defining my understanding of medicalisation and describing both the treatment and the condition of idiopathic short stature, I will problematise two fundamental issues: the medical/non-medical distinction and the debate about the goals of medicine. I will analyse them, combining perspectives of bioethics, medical sociology, philosophy of medicine and medical literature, and I will suggest that there are different levels of normativity of medicalisation. Ultimately, this study shows that: (1) the definition of idiopathic short stature, focusing only on actual height measurement, does not provide enough information to assess the need for treatment or not; (2) the analysis of the goals of medicine should be broadened to include justifications for the treatment; (3) the use of growth hormone for idiopathic short stature involves strong interests from different stakeholders. While the treatment might be beneficial for some children, it is necessary to be vigilant about possible misconduct at different levels of medicalisation.

摘要

2003年,美国食品药品监督管理局批准了对特发性身材矮小儿童使用生长激素进行治疗,即那些由于不明医学原因而比平均身高矮的儿童。鉴于不存在任何病理状况,这一决定作为医疗化的一个案例受到了质疑。本文的目的是通过对医疗化概念的批判性理解,拓宽关于支持和反对该治疗的理由的辩论,将身材矮小医疗化这一社会文化现象的考量纳入其中。在界定我对医疗化的理解并描述特发性身材矮小的治疗及病症之后,我将对两个基本问题提出质疑:医学与非医学的区分以及关于医学目标的辩论。我将结合生物伦理学、医学社会学、医学哲学和医学文献的视角对它们进行分析,并指出医疗化存在不同层面的规范性。最终,本研究表明:(1)仅关注实际身高测量的特发性身材矮小的定义,并未提供足够信息来评估是否需要治疗;(2)对医学目标的分析应予以拓宽,以纳入治疗的理由;(3)对特发性身材矮小使用生长激素涉及不同利益相关者的强烈利益。虽然该治疗可能对一些儿童有益,但有必要警惕在医疗化的不同层面可能出现的不当行为。

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本文引用的文献

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Growth hormone, enhancement and the pharmaceuticalisation of short stature.生长激素、身高增长与身材矮小的药物化
Soc Sci Med. 2015 Apr;131:305-12. doi: 10.1016/j.socscimed.2014.10.015. Epub 2014 Oct 7.
4
Height, socioeconomic status and marriage in Italy around 1900.1900 年前后意大利的身高、社会经济地位与婚姻。
Econ Hum Biol. 2013 Dec;11(4):465-73. doi: 10.1016/j.ehb.2012.06.004. Epub 2012 Jul 6.
9
On good and bad forms of medicalization.论医学化的好坏形式。
Bioethics. 2013 Jan;27(1):28-35. doi: 10.1111/j.1467-8519.2011.01885.x. Epub 2011 Apr 29.

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