Global Health Sciences, University of California, San Francisco (UCSF), United States.
Division of HIV, ID and Global Medicine, Department of Medicine, UCSF, United States.
Soc Sci Med. 2017 Oct;190:181-189. doi: 10.1016/j.socscimed.2017.08.031. Epub 2017 Aug 26.
Disability benefits have become an increasingly prominent source of cash assistance for impoverished American citizens over the past two decades. This development coincided with cuts and market-oriented reforms to state and federal welfare programs, characteristic of the wider political-economic trends collectively referred to as neoliberalism. Recent research has argued that contemporary discourses on 'disability fraudsters' and 'malingerers' associated with this shift represent the latest manifestation of age-old stigmatization of the 'undeserving poor'. Few studies, however, have investigated how the system of disability benefits, as well as these stigmatizing discourses, shapes the lived experience of disabling physical illness in today's United States. Here we present qualitative data from 64 semi-structured interviews with low-income individuals living with HIV and/or type 2 diabetes mellitus to explore the experience of long-term, work-limiting disability in the San Francisco Bay Area. Interviews were conducted between April and December 2014. Participants explained how they had encountered what they perceived to be excessive, obstructive, and penalizing bureaucracy from social institutions, leading to destitution and poor mental health. They also described being stigmatized as disabled for living with chronic ill health, and simultaneously stigmatized as shirking and malingering for claiming disability benefits as a result. Notably, this latter form of stigma appeared to be exacerbated by the bureaucracy of the administrating institutions. Participants also described intersections of health-related stigma with stigmas of poverty, gender, sexual orientation, and race. The data reveal a complex picture of poverty and intersectional stigma in this population, potentiated by a convoluted and inflexible bureaucracy governing the system of disability benefits. We discuss how these findings reflect the historical context of neoliberal cuts and reforms to social institutions, and add to ongoing debate around the future of public social provision for impoverished and chronically ill citizens under neoliberalism.
在过去的二十年中,残疾福利已成为贫困美国公民获得现金援助的一个日益重要的来源。这一发展与国家和联邦福利计划的削减和面向市场的改革相吻合,这是被统称为新自由主义的更广泛政治经济趋势的特征。最近的研究认为,与这种转变相关的当代关于“残疾诈骗者”和“装病者”的论述代表了对“不值得的穷人”的古老污名化的最新表现。然而,很少有研究调查残疾福利制度以及这些污名化的论述如何塑造当今美国身体残疾的生活体验。在这里,我们提出了来自圣弗朗西斯科湾区的 64 名低收入艾滋病毒感染者和/或 2 型糖尿病患者的半结构化访谈的定性数据,以探讨长期、限制工作的残疾的经历。访谈于 2014 年 4 月至 12 月进行。参与者解释了他们如何遇到他们认为过多、障碍和惩罚性的来自社会机构的官僚主义,导致贫困和心理健康状况不佳。他们还描述了因患有慢性疾病而被视为残疾,并因申请残疾福利而被视为逃避和装病而受到污名化。值得注意的是,这种后一种污名似乎因管理机构的官僚主义而加剧。参与者还描述了与健康相关的污名与贫困、性别、性取向和种族的污名之间的交叉点。这些数据揭示了这一人群中贫困和交叉污名的复杂情况,这是由管理残疾福利制度的复杂和僵化的官僚机构加剧的。我们讨论了这些发现如何反映新自由主义对社会机构的削减和改革的历史背景,并为新自由主义下贫困和慢性病人群的公共社会供给的未来增添了正在进行的辩论。