1 Department of Physiotherapy, La Trobe University, Melbourne, VIC, Australia.
2 Institute for Breathing and Sleep, Melbourne, VIC, Australia.
Chron Respir Dis. 2018 May;15(2):123-130. doi: 10.1177/1479972317729050. Epub 2017 Sep 4.
This study aimed to document the perspective of patients with chronic obstructive pulmonary disease (COPD) who underwent home-based pulmonary rehabilitation (HBPR) in a clinical trial. In this qualitative study, open-ended questions explored participants' views regarding HBPR. Thirteen semi-structured interviews were analysed using a thematic analysis approach. Major themes from interviews included the positive impact of HBPR on physical fitness, breathing and mood. Participants valued the flexibility and convenience of the programme. Participants also highlighted the importance of social support received, both from the physiotherapist over the phone and from family and friends who encouraged their participation. Reported challenges were difficulties in initiating exercise, lack of variety in training and physical incapability. While most participants supported the home setting, one participant would have preferred receiving supervised exercise training at the hospital. Participants also reported that HBPR had helped establish an exercise routine and improved their disease management. This study suggests that people with COPD valued the convenience of HBPR, experienced positive impacts on physical fitness and symptoms and felt supported by their community and programme staff. This highly structured HBPR model may be acceptable to some people with COPD as an alternative to centre-based pulmonary rehabilitation.
这项研究旨在记录在一项临床试验中接受家庭为基础的肺康复（HBPR）的慢性阻塞性肺疾病（COPD）患者的观点。在这项定性研究中，采用开放式问题探讨了参与者对 HBPR 的看法。对 13 次半结构化访谈进行了主题分析方法分析。访谈中的主要主题包括 HBPR 对身体健康、呼吸和情绪的积极影响。参与者重视该计划的灵活性和便利性。参与者还强调了从物理治疗师电话中以及家人和朋友那里获得的社会支持的重要性，他们鼓励他们参与。报告的挑战包括运动启动困难、训练缺乏多样性和身体能力不足。虽然大多数参与者支持家庭环境，但有一名参与者更愿意在医院接受监督下的运动训练。参与者还报告说，HBPR 帮助他们建立了锻炼习惯，并改善了疾病管理。这项研究表明，COPD 患者重视 HBPR 的便利性，体验到对身体健康和症状的积极影响，并感到他们的社区和计划工作人员的支持。这种高度结构化的 HBPR 模式可能对某些 COPD 患者作为中心为基础的肺康复的替代方案是可以接受的。
