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中国西部新疆地区艾滋病病毒感染者健康相关生活质量评估

Assessment of Health-Related Quality of Life among People Living with HIV in Xinjiang, West China.

作者信息

Maimaiti Rena, Yuexin Zhang, Kejun Pan, Wubili Maimaitaili, Lalanne Christophe, Duracinsky Martin, Andersson Rune

机构信息

1 Department of Prevention and Health Care, First Affiliated Hospital of Xinjiang Medical University, Xinjiang, PR China.

2 Department of Infectious Diseases, The First Affiliated Hospital of Xinjiang Medical University, Xinjiang, PR China.

出版信息

J Int Assoc Provid AIDS Care. 2017 Nov/Dec;16(6):588-594. doi: 10.1177/2325957417729752. Epub 2017 Sep 6.

Abstract

In total, 679 HIV-positive patients from 4 clinics in Urumqi city were given structured questionnaires by the doctors or nurses treating them. Health-related quality of life (HRQL) was assessed using the Chinese Patient-Reported Outcome Quality of Life-HIV questionnaire versions in Mandarin and Uyghur. This tool has been used in other parts of China and several countries. Compared to France, Australia, United States, Brazil, Thailand, Cambodia, Senegal, and Central-Southern China (CS China), the HRQL was significantly lower among HIV-positive patients in Xinjiang, with regard to the dimension of treatment impact and general health score. The health concern was similar to Brazil and Cambodia but lower than other countries and CS China. Our findings showed high stigmatization: 86% of the patients were afraid to tell others they were HIV positive and 69% often felt or always felt depressed. Only 1% of the patients were on antidepressant treatment.

摘要

乌鲁木齐市4家诊所的679名HIV阳性患者接受了负责治疗的医生或护士发放的结构化问卷。使用中文版的《中国患者报告的HIV生活质量问卷》普通话版和维吾尔语版对健康相关生活质量(HRQL)进行评估。该工具已在中国其他地区和多个国家使用。与法国、澳大利亚、美国、巴西、泰国、柬埔寨、塞内加尔以及中国中南部地区相比,新疆HIV阳性患者在治疗影响维度和总体健康评分方面的HRQL显著较低。健康关注度与巴西和柬埔寨相似,但低于其他国家和中国中南部地区。我们的研究结果显示出高度的污名化:86%的患者害怕告诉别人他们是HIV阳性,69%的患者经常感到或总是感到沮丧。只有1%的患者接受抗抑郁治疗。

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