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Benefits and burdens: family caregivers' experiences of assistive technology (AT) in everyday life with persons with young-onset dementia (YOD).

作者信息

Holthe Torhild, Jentoft Rita, Arntzen Cathrine, Thorsen Kirsten

机构信息

a Norwegian National Advisory Unit on Ageing and Health , Tönsberg , Norway.

b Department of Health and Care Sciences, Faculty of Health Sciences , The Arctic University of Norway , Tromsö , Norway.

出版信息

Disabil Rehabil Assist Technol. 2018 Nov;13(8):754-762. doi: 10.1080/17483107.2017.1373151. Epub 2017 Sep 11.


DOI:10.1080/17483107.2017.1373151
PMID:28891356
Abstract

BACKGROUND: People with dementia and their family caregivers may benefit from assistive technology (AT), but knowledge is scarce about family carers' (FC) experiences and involvement in the use of AT in everyday life. AIM: To examine the FC roles and experiences with AT as means of supporting people with young onset-dementia (YOD). METHOD: Qualitative interview study with follow-up design. Repeated semi-structured interviews were conducted with 13 FC of people with YOD, participating in an ongoing intervention study investigating the families' use and experiences of AT in everyday life. RESULTS: Six main themes emerged: (1) timely information about AT; (2) waiting times; (3) AT incorporated into everyday living; (4) AT experienced as a relief and burden; (5) appraisal of AT qualities and (6) the committed caregiver. CONCLUSIONS: The study found benefits for the FC, especially with simply designed AT, but also several barriers for successful use. A committed caregiver is vital throughout the process. Users will need professional advice and support, and occupational therapists may have a significant role in the process. Interventions implementing AT must be based on analysis of the needs of the person with YOD and the carers: their capabilities, preferences, embodied habits, and coping strategies. Implications for Rehabilitation Committed family carers (FC) play an important, often decisive, role in providing support for the person with young-onset dementia (YOD, onset <65 years) to use and benefit from the AT. The simpler the AT, the better. The AT should be introduced at "the right time", before the cognitive and adaptive reduction is too great. The "window" for implementation may be short. AT has potential to ease caregiving and give relief for FC. However, many barriers, difficulties and problems must be attended to. A system for individualized support over time is necessary for implementing AT for this group.

摘要

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Benefits and burdens: family caregivers' experiences of assistive technology (AT) in everyday life with persons with young-onset dementia (YOD).

Disabil Rehabil Assist Technol. 2018-11

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Syst Rev. 2025-4-17

[2]
Telephone and online support programs and assistive technologies that support informal carers of people living with young-onset dementia: A systematic review.

Dementia (London). 2025-8

[3]
Case Reports in the Integration of Technology with Cognitive Rehabilitation for Individuals with Memory Concerns and Their Care Partners.

Arch Clin Neuropsychol. 2025-5-21

[4]
Living with a person with young onset dementia - spousal experience.

Int J Qual Stud Health Well-being. 2024-12

[5]
Telecaregiving for Dementia: A Mapping Review of Technological and Nontechnological Interventions.

Gerontologist. 2024-1-1

[6]
Promotors and barriers to the implementation and adoption of assistive technology and telecare for people with dementia and their caregivers: a systematic review of the literature.

BMC Health Serv Res. 2022-12-23

[7]
Assisting Personalized Healthcare of Elderly People: Developing a Rule-Based Virtual Caregiver System Using Mobile Chatbot.

Sensors (Basel). 2022-5-18

[8]
Becoming a Family Caregiver to a Person With Dementia: A Literature Review on the Needs of Family Caregivers.

SAGE Open Nurs. 2021-7-22

[9]
Perceptions of Digital Technology Experiences and Development Among Family Caregivers and Technology Researchers: Qualitative Study.

JMIR Form Res. 2022-1-28

[10]
State-of-the-Art Sensors for Remote Care of People with Dementia during a Pandemic: A Systematic Review.

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