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痤疮患者生活质量的评估。欧洲皮肤病学会和性病学会生活质量与以患者为中心结局工作组及痤疮、酒渣鼻和化脓性汗腺炎工作组的立场文件。

Quality of life measurement in acne. Position Paper of the European Academy of Dermatology and Venereology Task Forces on Quality of Life and Patient Oriented Outcomes and Acne, Rosacea and Hidradenitis Suppurativa.

机构信息

Department of Dermatology and Venereology, National Medical University, Kiev, Ukraine.

Departments of Dermatology, Venereology, Allergology and Immunology, Dessau Medical Center, Brandenburg Medical School Theodore Fontane, Dessau, Germany.

出版信息

J Eur Acad Dermatol Venereol. 2018 Feb;32(2):194-208. doi: 10.1111/jdv.14585. Epub 2017 Oct 10.

Abstract

Acne causes profound negative psychological and social effects on the quality of life (QoL) of patients. The European Dermatology Forum S3-Guideline for the Treatment of Acne recommended adopting a QoL measure as an integral part of acne management. Because of constantly growing interest in health-related QoL assessment in acne and because of the high impact of acne on patients' lives, the European Academy of Dermatology and Venereology Task Force on QoL and Patient Oriented Outcomes and the Task Force on Acne, Rosacea and Hidradenitis Suppurativa have documented the QoL instruments that have been used in acne patients, with information on validation, purposes of their usage, description of common limitations and mistakes in their usage and overall recommendations.

摘要

痤疮会对患者的生活质量(QoL)产生深远的负面影响。欧洲皮肤病学会 S3-痤疮治疗指南建议将 QoL 测量作为痤疮管理的一个组成部分。由于人们对痤疮相关 QoL 评估的兴趣不断增加,并且痤疮对患者生活的影响很大,因此欧洲皮肤病学会和性病学会 QoL 和以患者为导向的结果工作组以及痤疮、酒渣鼻和化脓性汗腺炎工作组记录了已在痤疮患者中使用的 QoL 工具,包括验证信息、使用目的、常见限制和使用错误的描述以及总体建议。

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