Chernyshov P V, Finlay A Y, Tomas-Aragones L, Steinhoff M, Manolache L, Pustisek N, Dessinioti C, Svensson A, Marron S E, Bewley A, Salavastru C, Dréno B, Suru A, Koumaki D, Linder D, Evers A W M, Abeni D, Augustin M, Salek S S, Nassif A, Bettoli V, Szepietowski J С, Zouboulis C C
Department of Dermatology and Venereology, National Medical University, Kiev, Ukraine.
Division of Infection and Immunity, School of Medicine, Cardiff University, Cardiff, UK.
J Eur Acad Dermatol Venereol. 2023 May;37(5):954-964. doi: 10.1111/jdv.18918. Epub 2023 Feb 6.
The European Academy of Dermatology and Venereology (EADV) Task Forces (TFs) on Quality of Life (QoL) and Patient-Oriented Outcomes and Acne, Rosacea and Hidradenitis Suppurativa (ARHS) do not recommend the use of any generic instrument as a single method of Health Related (HR) QoL assessment in rosacea, except when comparing quimp (quality of life impairment) in rosacea patients with that in other non-dermatologic skin diseases and/or healthy controls. The EADV TFs on QoL and Patient-Oriented Outcomes and ARHS recommend the use of the dermatology-specific HRQoL instrument the Dermatology Life Quality Index (DLQI) and the rosacea-specific HRQoL instrument RosaQoL in rosacea patients. The DLQI minimal clinically important difference may be used as a marker of clinical efficacy of the treatment and DLQI score banding of 0 or 1 corresponding to no effect on patients' HRQoL could be an important treatment goal. This information may be added to consensuses and guidelines for rosacea.
欧洲皮肤病与性病学会(EADV)生活质量(QoL)与患者导向性结局特别工作组以及痤疮、酒渣鼻和化脓性汗腺炎(ARHS)特别工作组不建议将任何通用工具作为酒渣鼻健康相关(HR)生活质量评估的单一方法,除非用于比较酒渣鼻患者与其他非皮肤科皮肤疾病患者和/或健康对照者的生活质量损害情况。EADV生活质量与患者导向性结局特别工作组以及ARHS特别工作组建议在酒渣鼻患者中使用特定于皮肤科的HRQoL工具——皮肤病生活质量指数(DLQI)以及特定于酒渣鼻的HRQoL工具RosaQoL。DLQI最小临床重要差异可用作治疗临床疗效的标志物,DLQI评分为0或1对应对患者HRQoL无影响,这可能是一个重要的治疗目标。该信息可添加到酒渣鼻的共识和指南中。