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[痴呆症——患者及其亲属的观点]

[Dementia - View of sufferers and their relatives].

作者信息

Schaub Rainer, von Lützau-Hohlbein Heike

机构信息

Klinik für Gerontopsychiatrie und Psychotherapie, Klinikum am Weissenhof, 74189, Weinsberg, Deutschland.

Deutsche Alzheimer Stiftung, Berlin, Deutschland.

出版信息

Z Gerontol Geriatr. 2017 Oct;50(7):616-622. doi: 10.1007/s00391-017-1311-6. Epub 2017 Oct 9.

Abstract

Dementia is the leading cause of cognitive and functional impairment in old age; however, within the scientific community this complex disease is predominantly viewed from a narrow neurobiological and medical perspective, whereas the subjective aspects of dementia, particularly the psychological and social consequences, albeit severe are more or less neglected. In this article the subjective side of experiences of persons with dementia and their relatives are discussed and special aspects of their specific problems and needs during the course of the illness are described. The progress made in supporting persons with dementia and their carers during the last decades is considered and areas where further progress is necessary are delineated.

摘要

痴呆症是老年人认知和功能障碍的主要原因;然而,在科学界,这种复杂的疾病主要是从狭义的神经生物学和医学角度来看待的,而痴呆症的主观方面,尤其是心理和社会后果,尽管很严重,但或多或少被忽视了。本文讨论了痴呆症患者及其亲属经历的主观方面,并描述了他们在患病过程中具体问题和需求的特殊方面。文中还考虑了过去几十年在为痴呆症患者及其护理人员提供支持方面取得的进展,并划定了需要进一步取得进展的领域。

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