Child Study Center, School of Medicine, Yale University, 230 South Frontage, Room G70, New Haven, CT, 06510, USA.
School of Public Health, Yale University, New Haven, CT, USA.
J Autism Dev Disord. 2018 Apr;48(4):1301-1310. doi: 10.1007/s10803-017-3341-8.
Most studies investigating the experiences and needs of individuals with ASD have largely focused on males. Hence, this study investigates parents' perspectives on the challenges that their daughters with ASD face. In total, 40 parents of 40 females with autism (age range = 4-29 years; mean = 15.9) participated in the study. Five separate, 2-h long focus groups were conducted, with 7-10 participants in each group. Field notes were analyzed using thematic analysis. Some of the issues parents discussed were similar to those experienced by males with ASD, such as challenges in social interactions. However, other issues discussed were of particular relevance to girls with ASD, including difficulties socializing with other girls, sex-specific puberty issues, barriers in accessing intervention and sexual vulnerability.
大多数研究自闭症个体的经历和需求的研究主要集中在男性上。因此，本研究调查了父母对其自闭症女儿所面临挑战的看法。共有 40 名自闭症女孩（年龄范围=4-29 岁；平均=15.9）的父母参加了这项研究。共进行了五次单独的、每次 2 小时的焦点小组讨论，每个小组有 7-10 名参与者。使用主题分析对现场记录进行了分析。父母讨论的一些问题与自闭症男性所经历的问题相似，例如在社交互动方面的挑战。然而，讨论的其他问题与自闭症女孩特别相关，包括与其他女孩交往的困难、特定于性别的青春期问题、接受干预和性脆弱性方面的障碍。
