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[严重精神障碍中的家庭依从性]

[Family adherence in serious mental disorder].

作者信息

Martín Padilla Ernesto, Obando Posada Diana, Sarmiento Medina Pedro

机构信息

Facultad de Psicología, Universidad de La Sabana, Chía, Colombia.

Facultad de Psicología, Universidad de La Sabana, Chía, Colombia.

出版信息

Aten Primaria. 2018 Nov;50(9):519-526. doi: 10.1016/j.aprim.2017.06.010. Epub 2017 Oct 9.

DOI:10.1016/j.aprim.2017.06.010
PMID:29032844
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC6836919/
Abstract

OBJECTIVE

Identify attitudes and behaviors that evidence and characterize family adherence to treatment in patients with severe mental disorder.

DESIGN

Qualitative descriptive, from an interpretative social approach.

LOCATION

Chia, Colombia, with professionals in the psychiatric and geriatric settings.

PARTICIPANTS

Twelve professionals in psychiatry, nursing and psychology, with experience in care of patients with serious mental disorder and their families.

METHOD

Intentional sampling. Twelve semi-structured interviews were carried out. The analysis strategy was made from the procedures of constant comparison and open coding of the grounded theory. As validation strategies, triangulation was done between researchers and methods, as interviews and results survey.

RESULTS

Two categories of family adherence were defined: family and treatment (treatment cooperation, knowledge about the disease and attention to the disease evolution), and family attitudes towards the patient (patient's care, patient's promotion of autonomy, and affective attachment with the patient). A third category showed aspects that diminished family adherence, such as lack or distortion of information regarding mental disorder, or family and patient endurance attitudes.

CONCLUSIONS

Participants agree about the relevance of the construct named «family adherence», which describes the behaviors and attitudes of the family regarding the treatment of patients with severe mental disorder. Family adherence can be seen as active participation behavior, but also as a process of strengthening relationships, which can reduce the burden and suffering on family members, caregivers and patients.

摘要

目的

识别重度精神障碍患者家庭坚持治疗的证据及特征的态度和行为。

设计

基于解释性社会方法的定性描述。

地点

哥伦比亚基亚,涉及精神病学和老年病学领域的专业人员。

参与者

12名精神病学、护理学和心理学专业人员,具有照顾重度精神障碍患者及其家庭的经验。

方法

立意抽样。进行了12次半结构化访谈。分析策略基于扎根理论的持续比较和开放编码程序。作为验证策略,在研究人员和方法之间进行三角验证,如访谈和结果调查。

结果

定义了两类家庭坚持治疗的情况:家庭与治疗(治疗合作、对疾病的了解以及对疾病进展的关注),以及家庭对患者的态度(对患者的照顾、促进患者自主性以及与患者的情感依恋)。第三类展示了降低家庭坚持治疗的方面,如关于精神障碍的信息缺乏或歪曲,或家庭和患者的忍耐态度。

结论

参与者认同名为“家庭坚持治疗”这一概念的相关性,该概念描述了家庭在重度精神障碍患者治疗方面的行为和态度。家庭坚持治疗可被视为积极参与行为,也可视为加强关系的过程,这可以减轻家庭成员、护理人员和患者的负担与痛苦。

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本文引用的文献

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Rev Esp Salud Publica. 2017 Jan 18;91:e201701007.
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[Core values in family medicine revisited].[再谈家庭医学的核心价值观]
Aten Primaria. 2017 Apr;49(4):248-252. doi: 10.1016/j.aprim.2016.06.011. Epub 2016 Sep 7.
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[Psychosocial strategies to strengthen the coping with Parkinson's disease: Perspectives from patients, family carers and healthcare professionals].[加强帕金森病应对能力的心理社会策略:患者、家庭护理人员和医疗保健专业人员的观点]
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Adherence of 13-17 Year Old Adolescents to Medicinal and Non-pharmacological Treatment in Psychiatric Inpatient Care: Special Focus on Relative Clinical and Family Factors.13 - 17岁青少年在精神科住院治疗中对药物和非药物治疗的依从性:特别关注相关临床和家庭因素
Child Psychiatry Hum Dev. 2015 Oct;46(5):725-35. doi: 10.1007/s10578-014-0514-y.
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[Modifying habits and treatment adherence, essential for controlling the chronic disease].[改变习惯与治疗依从性,对控制慢性病至关重要]
Enferm Clin. 2014 Jan-Feb;24(1):59-66. doi: 10.1016/j.enfcli.2013.10.006. Epub 2013 Dec 24.
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Quality of life, treatment adherence, and locus of control: multiple family groups for chronic medical illnesses.生活质量、治疗依从性和控制源:慢性病的多重家庭团体治疗。
Fam Process. 2013 Dec;52(4):685-96. doi: 10.1111/famp.12034. Epub 2013 Jun 27.
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[Therapeutic adherence. How difficult it is to comply!].[治疗依从性。难以遵守啊!]
Aten Primaria. 2011 Jul;43(7):343-4. doi: 10.1016/j.aprim.2011.05.002. Epub 2011 Jun 11.
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Med Care. 2009 Aug;47(8):826-34. doi: 10.1097/MLR.0b013e31819a5acc.
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Adherence to treatment with antipsychotic medication and health care costs among Medicaid beneficiaries with schizophrenia.精神分裂症医疗补助受益人群中抗精神病药物治疗的依从性与医疗保健成本
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