Flurey Caroline, White Alan, Rodham Karen, Kirwan John, Noddings Robert, Hewlett Sarah
Academic Rheumatology, University of the West of England, Bristol, UK.
Centre for Men's Health, Faculty of Health & Social Sciences, Leeds Beckett University, Leeds, UK.
Sociol Health Illn. 2018 Jan;40(1):115-129. doi: 10.1111/1467-9566.12628. Epub 2017 Oct 15.
Current literature has overlooked the impact of chronic illness on masculine identity. We therefore aimed to investigate the impact of rheumatoid arthritis (a long term condition, affecting more women than men) on masculine identity. Six focus groups with 22 men with rheumatoid arthritis (RA) (data reported elsewhere) followed by five one-to-one interviews with men (English, mean age: 59 years) sampled to reflect a heterogeneous experience of life with RA based on knowledge gained from the focus groups. Transcripts were analysed using thematic analysis and are presented as individual case studies. Whilst the case studies provide five distinct experiences, common themes can be drawn across them, such as the importance of paid work. The men needed to renegotiate their masculine identity to deal with their RA. Two dealt with this by pushing through pain to retain masculine activities, two replaced masculine roles they could no longer do with other roles, and one rejected masculinity completely. Men with long term conditions may need to re-write their masculinity scripts to enable them to accept and adapt to their condition. However, some men struggle with this, which should be taken into consideration when designing self-management services for men with long term conditions.
当前的文献忽略了慢性病对男性身份认同的影响。因此,我们旨在调查类风湿性关节炎(一种长期疾病,女性患者多于男性)对男性身份认同的影响。我们对22名患有类风湿性关节炎(RA)的男性进行了6次焦点小组访谈(相关数据已在其他地方报道),随后对男性(以英语为母语,平均年龄:59岁)进行了5次一对一访谈,抽样是基于从焦点小组中获得的知识,以反映患有RA的男性的不同生活经历。使用主题分析法对访谈记录进行了分析,并以个体案例研究的形式呈现。虽然案例研究提供了五种不同的经历,但可以从中提炼出共同的主题,比如有偿工作的重要性。这些男性需要重新协商他们的男性身份认同以应对他们的类风湿性关节炎。其中两人通过忍受疼痛来继续进行男性化活动来应对这一情况,两人用其他角色取代了他们无法再扮演的男性角色,还有一人则完全摒弃了男性特质。患有长期疾病的男性可能需要重新编写他们的男性特质脚本,以便能够接受并适应自己的病情。然而,一些男性在这方面存在困难,在为患有长期疾病的男性设计自我管理服务时应考虑到这一点。