Gulliver Wayne, Landells Ian D R, Morgan David, Pirzada Syed
1 Memorial University, St John's, Newfoundland, Canada.
2 Newlab Clinical Research, Inc, St John's, Newfoundland, Canada.
J Cutan Med Surg. 2018 Jan/Feb;22(1):71-77. doi: 10.1177/1203475417736290. Epub 2017 Oct 23.
Unnecessary investigations, inappropriate treatment, worsening disease, and frustration for both patients and health care professionals are the hallmarks of hidradenitis suppurativa (HS) management. In light of a new treatment algorithm and biologic therapies made available to patients, an HS model of care is outlined in this article. The recommendations and management strategy presented here have been developed to help address the currently unmet needs of this patient population. The patient-centred model of care and disease management strategies were developed through the guidance and recommendations of HS medical experts in Newfoundland and Labrador. This article lays the foundation for the resources and steps required to change the status of this orphan disease and firmly embed patients with HS within a coordinated and integrative system of care.
不必要的检查、不恰当的治疗、病情恶化以及患者和医护人员的沮丧是化脓性汗腺炎（HS）管理的特征。鉴于一种新的治疗方案以及可供患者使用的生物疗法，本文概述了HS的护理模式。此处提出的建议和管理策略旨在帮助满足这一患者群体当前未得到满足的需求。以患者为中心的护理模式和疾病管理策略是通过纽芬兰和拉布拉多省HS医学专家的指导和建议制定的。本文为改变这种罕见病的现状以及将HS患者稳固纳入协调统一的护理体系所需的资源和步骤奠定了基础。
