Bayliss Kerin, Prince Rebecca, Dewhurst Hal, Parsons Suzanne, Holmes Leah, Brown Paul
Public Programmes Team, Research and Innovation Division, Central Manchester University Hospitals NHS Foundation Trust and the University of Manchester, Manchester Academic Health Science Centre, Manchester, UK.
Involvement and Engagement Steering Group, NIHR/Wellcome Trust Manchester Clinical Research Facility, Central Manchester University Hospitals NHS Foundation Trust, Manchester, UK.
Res Involv Engagem. 2017 Apr 26;3:10. doi: 10.1186/s40900-017-0059-x. eCollection 2017.
The Experience Based Design (EBD) approach involves patients, staff and members of the public working together to improve a service. This paper evaluates the methods that are used to involve patients and members of the public in a project that aimed to improve the patient experience at Manchester Clinical Research Facility (MCRF). The aim was to explore what helps staff and members of the public to work well together. An evaluation questionnaire was used to get feedback from staff and public contributors. Questions included whether each person felt that they were able to shape the project; if they received enough training; whether they had enough time to complete each task; how well they thought the group worked together; and what could be improved. The findings showed that both staff and public contributors felt valued and that they were able to shape the project from the beginning. Training in EBD and research methodology, and providing enough time to complete each task helped to build relationships and increase confidence when contributing to the project. Personal benefits included a feeling of ownership over a worthwhile and rewarding project, increased awareness of public involvement and gaining new skills. The recommendations for successful involvement of patients and the public in EBD projects will hopefully be helpful for similar projects in the future.
The Experience Based Design (EBD) approach promotes the effective involvement of patients and public contributors by enabling patients, public contributors and staff to co-design projects that aim to improve the patient experience. This approach allows patients and members of the public to have a role in shaping and improving current services. This paper aims to evaluate the EBD process from a public involvement perspective, exploring the barriers and facilitators to building successful working relationships. An open-ended evaluation questionnaire was developed to gain feedback from staff and public contributors who co-produced an EBD project that aimed to improve the patient experience at Manchester CRF. Questions explored what worked well, how the project could be improved, and the benefits of being involved. Our findings highlight the importance of providing opportunities for staff, patients and members of the public to build relationships in order to feel confident in voicing their opinions. This can be achieved by training both staff and public contributors in EBD methodology to reduce any power imbalance that may exist. Negotiating adequate time to complete tasks and debate the best way forward also allows everyone to fully contribute to the project. Each individual felt that their contribution was valued and that they shaped the final action plan. Both public contributors and staff listed a number of personal benefits from their involvement in the project. This included a feeling of ownership over a worthwhile and rewarding project, increased awareness of public involvement in EBD projects and gaining new skills. This evaluation provides recommendations for best practice for effectively involving public contributors in an EBD methodology. These findings aim to encourage a more consistent approach to EBD across organisations.
基于经验的设计（EBD）方法让患者、工作人员和公众共同努力以改善一项服务。本文评估了在一个旨在改善曼彻斯特临床研究机构（MCRF）患者体验的项目中，用于让患者和公众参与的方法。目的是探索有助于工作人员和公众良好协作的因素。使用了一份评估问卷来收集工作人员和公众参与者的反馈。问题包括每个人是否觉得自己能够影响项目；是否得到了足够的培训；是否有足够的时间完成各项任务；他们认为团队协作得如何；以及哪些方面可以改进。研究结果表明，工作人员和公众参与者都感到自己受到重视，并且从一开始就能影响项目。接受基于经验的设计和研究方法方面的培训，以及提供足够的时间完成各项任务，有助于在参与项目时建立关系并增强信心。个人收获包括对一个有价值且有意义的项目产生主人翁意识、提高对公众参与的认识以及获得新技能。关于患者和公众成功参与基于经验的设计项目的建议，有望对未来类似项目有所帮助。
基于经验的设计（EBD）方法通过让患者、公众参与者和工作人员共同设计旨在改善患者体验的项目，促进患者和公众参与者的有效参与。这种方法使患者和公众能够在塑造和改进现有服务中发挥作用。本文旨在从公众参与的角度评估基于经验的设计过程，探索建立成功工作关系的障碍和促进因素。设计了一份开放式评估问卷，以收集参与共同开展一个旨在改善曼彻斯特临床研究机构患者体验的基于经验的设计项目的工作人员和公众参与者的反馈。问题探讨了哪些方面进展顺利、项目如何改进以及参与的益处。我们的研究结果强调了为工作人员、患者和公众提供建立关系的机会，以便他们有信心表达意见的重要性。这可以通过对工作人员和公众参与者进行基于经验的设计方法培训来实现，以减少可能存在的权力不平衡。协商足够的时间来完成任务并讨论最佳前进方式，也能让每个人充分为项目做出贡献。每个人都觉得自己的贡献受到重视，并且自己影响了最终的行动计划。公众参与者和工作人员都列出了参与项目带来的一些个人收获。这包括对一个有价值且有意义的项目产生主人翁意识、提高对公众参与基于经验的设计项目的认识以及获得新技能。本评估为在基于经验的设计方法中有效让公众参与者参与提供了最佳实践建议。这些研究结果旨在鼓励各组织在基于经验的设计方面采取更一致的方法。
