Sy Wayne, Lamb Angela J
Department of Dermatology, The Mount Sinai Hospital, New York, NY, USA.
Adv Exp Med Biol. 2017;1027:179-184. doi: 10.1007/978-3-319-64804-0_14.
Atopic dermatitis is a skin condition that is increasing burdensome to patient's lives. Patients require effective strategies to cope with the condition as well as the vast amount of new research that is coming to the forefront. This chapter discusses the patient education aspect of atopic dermatitis. We drew from various sources-such as peer-reviewed academic journals, online groups, and organizational websites-to provide a brief survey of the available types of patient educational resources. We discuss educational materials and interventions, such as workshops and support groups. In addition to the content of the workshops, we also explore the importance of their facilitators. We also review organizations in the US that pertain to atopic dermatitis and eczema care, such as the National Eczema Association and the American Academy of Dermatology. Lastly, we survey the role of technology-such as social media, web-based applications and teledermatology-in facilitating patient education. Despite the promising impacts of these technological interventions in the way patients consume educational materials, we also acknowledge that they are not widely used.
特应性皮炎是一种给患者生活带来日益沉重负担的皮肤疾病。患者需要有效的应对策略来处理这种疾病以及大量新出现的前沿研究。本章讨论特应性皮炎患者教育方面的内容。我们从各种来源——如同行评审学术期刊、在线群组和组织网站——中取材，以简要概述现有的患者教育资源类型。我们讨论教育材料和干预措施，比如工作坊和支持小组。除了工作坊的内容，我们还探讨其主持人的重要性。我们也会回顾美国与特应性皮炎和湿疹护理相关的组织，比如国家湿疹协会和美国皮肤科协会。最后，我们调查社交媒体、基于网络的应用程序和远程皮肤病学等技术在促进患者教育方面的作用。尽管这些技术干预在患者获取教育材料的方式上有积极影响，但我们也承认它们并未得到广泛应用。
