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患者数据的二次使用:2016年发表文献综述

Secondary Use of Patient Data: Review of the Literature Published in 2016.

作者信息

Schlegel D R, Ficheur G

出版信息

Yearb Med Inform. 2017 Aug;26(1):68-71. doi: 10.15265/IY-2017-032. Epub 2017 Sep 11.

DOI:10.15265/IY-2017-032
PMID:29063536
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC6250993/
Abstract

To summarize recent research and emerging trends in the area of secondary use of healthcare data, and to present the best papers published in this field, selected to appear in the 2017 edition of the IMIA Yearbook. A literature review of articles published in 2016 and related to secondary use of healthcare data was performed using two bibliographic databases. From this search, 941 papers were identified. The section editors independently reviewed the papers for relevancy and impact, resulting in a consensus list of 14 candidate best papers. External reviewers examined each of the candidate best papers and the final selection was made by the editorial board of the Yearbook. From the 941 retrieved papers, the selection process resulted in four best papers. These papers discuss data quality concerns, issues in preserving privacy of patients in shared datasets, and methods of decision support when consuming large amounts of raw electronic health record (EHR) data. In 2016, a significant effort was put into the development of new systems which aim to avoid significant human understanding and pre-processing of healthcare data, though this is still only an emerging area of research. The value of temporal relationships between data received significant study, as did effective information sharing while preserving patient privacy.

摘要

总结医疗保健数据二次利用领域的近期研究和新趋势,并展示该领域发表的最佳论文,这些论文入选了《国际医学信息学协会年鉴》2017年版。使用两个书目数据库对2016年发表的与医疗保健数据二次利用相关的文章进行了文献综述。通过此次检索,共识别出941篇论文。各章节编辑独立审查论文的相关性和影响力,最终形成了一份包含14篇候选最佳论文的共识清单。外部评审员对每篇候选最佳论文进行了审查,最终由年鉴编辑委员会做出最终选择。从检索到的941篇论文中,评选过程产生了四篇最佳论文。这些论文讨论了数据质量问题、共享数据集中保护患者隐私的问题,以及在处理大量原始电子健康记录(EHR)数据时的决策支持方法。2016年,人们在开发旨在避免对医疗保健数据进行大量人工理解和预处理的新系统方面付出了巨大努力,不过这仍然只是一个新兴的研究领域。数据之间时间关系的价值得到了大量研究,在保护患者隐私的同时进行有效信息共享也是如此。

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Clin J Am Soc Nephrol. 2016 Dec 7;11(12):2150-2158. doi: 10.2215/CJN.02420316. Epub 2016 Oct 10.
3
Registry-based randomized controlled trials- what are the advantages, challenges, and areas for future research?基于注册登记的随机对照试验——其优势、挑战及未来研究方向有哪些?
J Clin Epidemiol. 2016 Dec;80:16-24. doi: 10.1016/j.jclinepi.2016.08.003. Epub 2016 Aug 20.
4
Performance of a Natural Language Processing (NLP) Tool to Extract Pulmonary Function Test (PFT) Reports from Structured and Semistructured Veteran Affairs (VA) Data.一种自然语言处理(NLP)工具从结构化和半结构化退伍军人事务部(VA)数据中提取肺功能测试(PFT)报告的性能。
EGEMS (Wash DC). 2016 Jun 1;4(1):1217. doi: 10.13063/2327-9214.1217. eCollection 2016.
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