Berg T, Tewarie L, Moza A, Zayat R, Autschbach R, Stoppe C, Goetzenich A, Benstoem C
Klinik für Thorax‑, Herz- und Gefäßchirurgie, Medizinische Fakultät RWTH Aachen, Pauwelsstr. 30, 52074, Aachen, Deutschland.
Klinik für Operative Intensivmedizin und Intermediate Care, Medizinische Fakultät RWTH Aachen, Aachen, Deutschland.
Herz. 2019 May;44(3):257-264. doi: 10.1007/s00059-017-4636-4. Epub 2017 Oct 27.
Ventricular assist device (VAD) implantation has developed into a well-established option when conservative treatment of terminal heart failure has been exhausted. Figures from 2015 make this clear: only 283 heart transplantations were performed nationwide but 959 VAD systems were implanted. It is noteworthy that the survival times with a VAD are approaching the survival times after heart transplantation. Patients with VADs have a life-long dependency on their proximity to specialists. So far, the requirements for outpatient care have not been systematically recorded from the perspective of VAD patients and their relatives. In September 2016, VAD patients (n = 30) and their relatives (n = 25) were anonymously questioned about their views on postoperative outpatient care. For this purpose, the VAD Patient Satisfaction Survey was adapted to the needs of this study. Patients with VADs and their relatives were found to experience their daily life with a VAD in a positive manner. Information, training, accessibility and regular contacts with the implantation clinic and the VAD coordinator are important pillars of outpatient care after VAD implantation. Almost 95% of surveyed patients regarded good home support as an important factor that makes life with a VAD easier. These aspects should be taken into account in the care of patients living with a VAD.
当终末期心力衰竭的保守治疗手段用尽时，心室辅助装置（VAD）植入已发展成为一种成熟的选择。2015年的数据清楚地表明了这一点：全国仅进行了283例心脏移植手术，但植入了959套VAD系统。值得注意的是，使用VAD的生存时间正在接近心脏移植后的生存时间。使用VAD的患者一生都依赖于靠近专家。到目前为止，尚未从VAD患者及其亲属的角度系统记录门诊护理的需求。2016年9月，对30名VAD患者及其25名亲属就他们对术后门诊护理的看法进行了匿名询问。为此，VAD患者满意度调查根据本研究的需要进行了调整。发现使用VAD的患者及其亲属以积极的方式体验他们使用VAD的日常生活。信息、培训、可及性以及与植入诊所和VAD协调员的定期联系是VAD植入后门诊护理的重要支柱。几乎95%的受访患者认为良好的家庭支持是使使用VAD的生活更轻松的一个重要因素。在照顾使用VAD的患者时应考虑这些方面。
