Fair Cynthia, Allen Hannah, Trexler Connie, D'Angelo Lawrence J
1 Public Health Studies and Human Service Studies, Department Chair of Public Health Studies, Elon University , Elon, North Carolina.
2 University of Tennessee Health Science Center , College of Medicine, Memphis, Tennessee.
AIDS Patient Care STDS. 2017 Nov;31(11):479-485. doi: 10.1089/apc.2017.0141.
This research explores the perceptions of adolescents and young adults (AYA) living with perinatally acquired HIV (PHIV) as they transition into parenthood. We conducted hour-long, semistructured audio-recorded interviews with a purposive sample of 17 AYA parents with PHIV who were current or former patients at two US pediatric/adolescent infectious diseases clinics. Participants were asked about challenges/rewards of parenting and anticipated future fertility desires/intentions. Analysis of the transcribed interviews was guided by grounded theory. Mean age of participants was 22 years. The majority were African American (n = 8) or Hispanic (n = 6) and female (n = 14). Two participants were pregnant and others had a range of 1-3 children (mean = 1.4), one of whom was HIV positive. Analyses revealed that time with their child was a valuable commodity. Participants expressed concerns about not "being there" for their child due to sickness and worries that their child may experience HIV-related discrimination once a parent's HIV status was disclosed. The importance of being a role model and present in their child's life over time was emphasized and served as motivation to pursue education and employment opportunities. Those parents who intended to have another child were motivated by a strong desire to create a legacy and a family of their own as a way to deal with HIV-related losses and stigma. Participants reported the importance of emotional support offered by providers, as well as concrete social services available in that care setting even if they had transitioned to adult care. AYA also expressed parenting rewards/challenges similar to those of their uninfected peers. As youth with PHIV continue to mature, increasing numbers will become parents. It is incumbent upon both pediatric and adult providers to support newly formed families living in the context of intergenerational HIV infection.
本研究探讨了围产期感染艾滋病毒（PHIV）的青少年和青年成人（AYA）在过渡到为人父母阶段时的看法。我们对17位感染PHIV的AYA父母进行了为期一小时的半结构化录音访谈，这些父母是美国两家儿科/青少年传染病诊所的现任或前任患者，选取该样本是有目的的。参与者被问及育儿的挑战/回报以及未来预期的生育愿望/意图。对转录访谈的分析以扎根理论为指导。参与者的平均年龄为22岁。大多数是非洲裔美国人（n = 8）或西班牙裔（n = 6），且为女性（n = 14）。两名参与者当时怀有身孕，其他参与者育有1至3个孩子（平均为1.4个），其中有一个孩子感染了艾滋病毒。分析表明，与孩子相处的时光是宝贵的。参与者担心因患病而无法“陪伴”孩子，也担心一旦父母披露其艾滋病毒感染状况，孩子可能会遭受与艾滋病毒相关的歧视。他们强调随着时间推移在孩子生活中成为榜样并陪伴在侧的重要性，这成为他们追求教育和就业机会的动力。那些打算再要一个孩子的父母，其动力源于强烈渴望创造一份遗产并拥有自己的家庭，以此来应对与艾滋病毒相关的损失和污名。参与者报告了医疗服务提供者给予情感支持的重要性，以及在该护理环境中可获得的具体社会服务的重要性，即便他们已过渡到成人护理阶段。感染PHIV的青少年和青年成人也表达了与未感染同龄人相似的育儿回报/挑战。随着感染PHIV的年轻人不断成熟，会有越来越多的人成为父母。儿科和成人医疗服务提供者都有责任支持生活在代际艾滋病毒感染背景下的新组建家庭。
