“我们与他人并无不同”：一项关于感染艾滋病毒的西班牙裔青少年和年轻人生存体验的定性研究。
"We Are Not Different than Others": A Qualitative Study of the Lived Experience of Hispanic Adolescents and Young Adults Living with Perinatally Acquired HIV.
机构信息
Department of Public Health Studies, Elon University, Elon, NC 27244, USA.
Department of Infectious Disease, University of Southern California Medical Center, Los Angeles, CA 90033, USA.
出版信息
Int J Environ Res Public Health. 2023 Feb 8;20(4):2996. doi: 10.3390/ijerph20042996.
Though Hispanic youth with perinatally acquired HIV (PHIV) comprise 14% of those living with PHIV, little research has documented their lived experiences. Eighteen Hispanic adolescents and young adults (AYA) with PHIV were recruited from two pediatric infectious disease clinics in California (mean age = 20.8 years, 12 females and 6 males). Interview transcripts were analyzed for emergent themes regarding relationships, childbearing intentions, and future career aspirations. Participants acknowledged HIV as cause for rejection and fear of transmission from partners. Most desired children in the future. Those with children (n = 7) expressed a strong desire to continue their education for the benefit of their children. Many did not view HIV as a barrier to their career aspirations. HIV influenced their daily lives. However, the challenges of poverty, loss, and trauma also significantly shaped their well-being. Health care providers offered emotional and instrumental support which helped AYA make progress towards their goals.
尽管西班牙语裔青少年（Hispanic youth）中有 14% 是在围产期（perinatally）感染艾滋病毒（HIV）的，（然而）很少有研究记录他们的生活经历。我们从加利福尼亚州的两家儿科传染病诊所（pediatric infectious disease clinics）招募了 18 名感染 HIV 的西班牙语裔青少年和年轻人（Hispanic adolescents and young adults，AYA）（平均年龄=20.8 岁，12 名女性，6 名男性）。对采访记录进行了分析，以发现与人际关系、生育意愿和未来职业抱负相关的主题。参与者承认，艾滋病毒是导致他们被伴侣拒绝和担心传染的原因。大多数人希望未来能有孩子。其中 7 人有孩子，他们表达了强烈的愿望，希望继续接受教育，使孩子受益。许多人并不认为艾滋病毒会阻碍他们的职业抱负。艾滋病毒影响了他们的日常生活。然而，贫困、失去和创伤的挑战也严重影响了他们的幸福感。医疗保健提供者提供了情感和实际支持，帮助 AYA 朝着他们的目标取得进展。
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