O'Riordan Ruth, Doran Michele, Connolly Deirdre
Occupational Therapy Department, St. James' Hospital, James' Street, Dublin 8, Ireland.
Rheumatology Department, St. James' Hospital, James' Street, Dublin 8, Ireland.
Occup Ther Int. 2017 Jan 11;2017:4530104. doi: 10.1155/2017/4530104. eCollection 2017.
Fatigue and Activity Management Education (FAME) is a six-week occupational therapy-led programme focusing on fatigue and stress management, exercise, nutrition, and joint protection. Each session consists of education and goal setting.
To assess the impact of FAME on occupational participation and fatigue management.
Three programmes were facilitated with twenty-one women with SLE. A mixed methods design was used. Quantitative data were collected using self-reported questionnaires administered before, immediately after, and eight weeks after intervention. Data were analysed using descriptive and nonparametric inferential statistics. Qualitative data were collected through focus groups and interviews. Thematic analysis was carried out on the qualitative data.
There was a statistically significant improvement in depression as measured by the Hospital Anxiety and Depression Scale and categories of "burden to others" and "fatigue" in the LupusQoL. There were nonsignificant improvements in fatigue, occupational participation, self-efficacy, and anxiety. Participants reported an improved understanding of fatigue and the impact of stress on fatigue. They also identified self-management strategies they were using on a daily basis.
疲劳与活动管理教育（FAME）是一项为期六周的由职业治疗主导的项目，专注于疲劳和压力管理、运动、营养以及关节保护。每次课程包括教育和目标设定。
评估FAME对职业参与和疲劳管理的影响。
对21名系统性红斑狼疮女性实施了三个项目。采用混合方法设计。通过在干预前、干预后即刻以及干预后八周进行的自我报告问卷收集定量数据。使用描述性和非参数推断统计分析数据。通过焦点小组和访谈收集定性数据。对定性数据进行主题分析。
根据医院焦虑抑郁量表测量，抑郁状况有统计学显著改善，且在狼疮生活质量量表中“对他人的负担”和“疲劳”类别也有改善。在疲劳、职业参与、自我效能和焦虑方面有不显著的改善。参与者报告称对疲劳以及压力对疲劳的影响有了更好的理解。他们还确定了日常使用的自我管理策略。
