Olveira Gabriel, Martínez-Olmos Miguel Ángel, Fernández de Bobadilla Belén, Ferrer Mercedes, Virgili Nuria, Vega Belén, Blanco Mercedes, Layola Miquel, Lizán Luis, Aceituno Susana
Hospital Regional Universitario de Málaga.
Nutr Hosp. 2017 Oct 24;34(5):1013-1023. doi: 10.20960/nh.895.
Establishing a home enteral nutrition (HEN) that is adapted to the patient's needs and preferences can improve their quality of life and adherence, contributing to a higher treatment efficiency, better prognosis and cost reduction. As in most cases, patients need total or partial help from their caregivers, and there is a need for evaluating how well do caregivers know their patients' priorities.
Exploring patients' preferences for HEN characteristics in Spain, and the concordance between patients and caregivers.
A cross-sectional observational study based on the discrete choice experiment methodology. A set of eight choice scenarios generated from six attributes with two levels each was presented along with an ad hoc questionnaire on the importance and satisfaction with HEN. The relative importance (RI) of each attribute and the patient-caregiver concordance was estimated in every question.
One hundred and forty-eight patients participated, and in 77 cases both the patient and the caregiver took the survey. The most important attributes (RI) for HEN were adaptation to comorbidities (33%), tolerability (33%), nutrients and calories (26%) and package characteristics (8%). Patients showed a high degree of satisfaction with the assistance received. Concordance between patient and caregiver was found in every question, being it moderate to good.
According to patients, an ideal HEN product would be adaptable to comorbidities, easy to tolerate, providing the necessary nutrients and calories, with an easy to handle package. Caregivers know well their patients' preferences.
建立适合患者需求和偏好的家庭肠内营养（HEN）可以提高他们的生活质量和依从性，有助于提高治疗效率、改善预后并降低成本。在大多数情况下，患者需要护理人员的全部或部分帮助，因此有必要评估护理人员对患者优先事项的了解程度。
探索西班牙患者对家庭肠内营养特征的偏好，以及患者与护理人员之间的一致性。
基于离散选择实验方法的横断面观察性研究。提出了一组由六个属性（每个属性有两个水平）生成的八个选择场景，以及一份关于家庭肠内营养的重要性和满意度的特设问卷。在每个问题中估计每个属性的相对重要性（RI）以及患者与护理人员的一致性。
148名患者参与，77例患者和护理人员都进行了调查。家庭肠内营养最重要的属性（RI）是对合并症的适应性（33%）、耐受性（33%）、营养成分和热量（26%）以及包装特征（8%）。患者对所获得的帮助表示高度满意。在每个问题中都发现患者与护理人员之间存在一致性，程度为中等至良好。
根据患者的说法，理想的家庭肠内营养产品应能适应合并症、易于耐受、提供必要的营养成分和热量，并且包装易于处理。护理人员很了解患者的偏好。
