D'Alberton Franco, Vissani Sofia, Ferracuti Chiara, Pasterski Vickie
Department of Pediatrics, S. Orsola-Malpighi Bologna University Hospital, Bologna, Italy.
Sex Dev. 2018;12(1-3):123-134. doi: 10.1159/000484189. Epub 2017 Nov 17.
The aim of the current report is to provide guidance relevant to psychological evaluation for healthcare providers and researchers working in the field of disorders of sexual development (DSD). In doing so, we give careful consideration to methodological issues and limitations that may influence the utility of investigations. For example, rarity and heterogeneity of DSD conditions restrict sample sizes when conducting evaluations aimed at establishing condition-specific psychological outcomes. At the same time, the potential for stigmatization by virtue of conducting psychological evaluations is particularly high given the fundamental contribution of sex and gender to one's sense of self and integrity. This article will provide basic theory for psychological evaluation as well as give a review of specific measures that can be employed for clinical purposes depending on a variety of parameters, including life stage of the patient and goal(s) of the evaluation. Care providers and service users may benefit from guidance in coping with the difficulties inherent in having and/or treating DSD. The potential for identification with the patient with DSD is higher than in other domains of medicine because sexual and gender identities are fundamental to all humans and are continually evolving from a sociological perspective.
本报告的目的是为从事性发育障碍（DSD）领域工作的医疗服务提供者和研究人员提供与心理评估相关的指导。在此过程中，我们仔细考虑了可能影响调查效用的方法学问题和局限性。例如，DSD病症的罕见性和异质性限制了在进行旨在确定特定病症心理结果的评估时的样本量。同时，鉴于性与性别对个体自我认知和完整性的根本作用，进行心理评估时遭受污名化的可能性特别高。本文将提供心理评估的基础理论，并根据包括患者生命阶段和评估目标在内的各种参数，对可用于临床目的的具体测量方法进行综述。护理人员和服务使用者可能会从应对患有和/或治疗DSD所固有的困难的指导中受益。与其他医学领域相比，对患有DSD的患者产生认同感的可能性更高，因为性和性别认同对所有人来说都是基本的，并且从社会学角度来看它们在不断演变。
