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ABCD 研究中的保留问题探讨。

Approaching Retention within the ABCD Study.

机构信息

Oregon Health & Science University, Department of Child & Adolescent Psychiatry, 3181 SW Sam Jackson Park Rd, M/C DC7P, Portland, OR 97239, USA.

University of Maryland, School of Medicine, Diagnostic Radiology and Nuclear Medicine, 419 W. Redwood Street, Suite 225, Baltimore, MD 21201, USA.

出版信息

Dev Cogn Neurosci. 2018 Aug;32:130-137. doi: 10.1016/j.dcn.2017.11.004. Epub 2017 Nov 11.

Abstract

Retention efforts are critical to maintain relationships with research participants over time. This is especially important for the Adolescent Brain Cognitive Development (ABCD) study, where families are asked to stay engaged with the study throughout the course of 10 years. This high-degree of involvement is essential to longitudinally track child and adolescent development. At a minimum, we will connect with families every 6 months by telephone, and every year in person, with closer contact with the youth directly as they transition into adolescence. Differential retention, when related to non-random issues pertaining to demographic or risk features, can negatively impact the generalizability of study outcomes. Thus, to ensure high rates of retention for all participants, the ABCD study employs a number of efforts to support youth and families. This overview details the framework and concrete steps for retention.

摘要

保留努力对于随着时间的推移与研究参与者保持关系至关重要。这对于青少年大脑认知发展(ABCD)研究尤其重要,该研究要求家庭在 10 年的时间内全程参与研究。这种高度参与对于纵向跟踪儿童和青少年的发展至关重要。至少,我们将通过电话每 6 个月与家庭联系一次,每年亲自联系一次,随着青少年的直接转变,与青少年有更密切的联系。当与人口统计学或风险特征相关的非随机问题有关时,差异保留会对研究结果的普遍性产生负面影响。因此,为确保所有参与者的保留率都很高,ABCD 研究采用了多种措施来支持青少年和家庭。本概述详细介绍了保留的框架和具体步骤。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e0d7/6969249/cf9113f3d56a/gr1.jpg

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