Department of Anestesiology and Intensive Care, Odense University Hospital, Sdr. Boulevard 29, DK-5000 Odense C, Denmark.
Intensive Crit Care Nurs. 2018 Apr;45:25-30. doi: 10.1016/j.iccn.2017.10.001. Epub 2017 Nov 26.
To explore children's' and families' experiences of using intensive care diaries after discharge and the role of diaries in the process of recovering from a stay in the paediatric intensive care unit.
Qualitative, exploratory design. Data collection consisted of semi-structured interviews with five children and their families, conducted four to six months after discharge from the intensive care unit. Inclusion criteria were children and their families, with a stay for more than three days who had a diary written for them. Data were analysed using thematic analysis FINDINGS: Three main themes emerged: (i) value to the entire family, (ii) creating memories, (iii) the importance of pictures.
Diaries were used after discharge as a support for both children and families and played a role in making the paediatric intensive care experience meaningful by providing explanations and coherence. The findings suggest that a diary can serve as a catalyst for the coping process of the family unit. Findings also confirm how the children's memories are characterised by a sense of unreality. The diary could thus help fill in some of the missing picture to support the children in understanding their story.
探索儿童和家庭在出院后使用重症监护日记的体验，以及日记在从儿科重症监护病房康复过程中的作用。
定性、探索性设计。数据收集包括对五名儿童及其家庭的半结构化访谈，在出院后四个月至六个月进行。纳入标准为住院超过三天并为其撰写日记的儿童及其家庭。使用主题分析进行数据分析。
出现了三个主要主题：（i）对整个家庭的价值，（ii）创造回忆，（iii）图片的重要性。
日记在出院后被用作儿童和家庭的支持，通过提供解释和连贯性，在使儿科重症监护体验有意义方面发挥了作用。研究结果表明，日记可以作为家庭单位应对过程的催化剂。研究结果还证实了儿童记忆的不真实感特征。因此，日记可以帮助填补一些缺失的画面，以支持儿童理解他们的故事。
