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混合管饲法的再度出现及家长报告的其接受管饲儿童的经历

Reemergence of Blended Tube Feeding and Parent's Reported Experiences in Their Tube Fed Children.

作者信息

Johnson Teresa W, Spurlock Amy L, Epp Lisa, Hurt Ryan T, Mundi Manpreet S

机构信息

1 College of Health and Human Services, Troy University , Troy, AL.

2 Division of Endocrinology, Diabetes, Metabolism and Nutrition, Mayo Clinic , Rochester, MN.

出版信息

J Altern Complement Med. 2018 Apr;24(4):369-373. doi: 10.1089/acm.2017.0134. Epub 2017 Nov 29.

Abstract

OBJECTIVE

Healthcare providers (HCPs) report increased interest in blenderized tube feeding (BTF) as an alternative to commercial formula (CF) feeding-particularly in families of tube fed children. The objective of this study was to explore parents' reported experiences of CF and BTF in their children.

DESIGN

Prospective descriptive study utilizing a convenience sample.

SETTING/SUBJECTS: Parents (n = 433) of tube fed children in an online tube feeding support group completed an electronic survey to compare experiences of CF and BTF in their tube fed children.

RESULTS

The sample was evenly represented by parents using CF (50.5%) and BTF (49.5%). Reasons parents chose BTF included desire to provide whole foods (20.2%), decrease symptoms of tube feeding intolerance (19.7%), provide family meals (12.2%), increase oral intake (10.8%), address allergies (5.3%), or because they did not like formula (19.7%). Parents reported fewer symptoms of tube feeding intolerance on BTF and their children more frequently met growth goals compared to formula feeding. Only half (49.3%) of parents using BTF referred to HCPs for recipes and feeding oversight. The primary reasons parents did not use BTF included lack of knowledge (50.9%) or time constraints (20.0%).

CONCLUSIONS

A significant number of parents in this sample successfully provide full or partial BTF to their children but only half rely on HCPs for guidance. There is wide variability in BTF preparation and delivery. Parents who use or have interest in BTF need knowledgeable and supportive HCPs for guidance and follow-up due to the unique nutritional needs of this patient population. HCPs need to be prepared to screen families of tube fed children who are using BTF or are interested in this feeding alternative to CF. Healthcare facilities need to evaluate their enteral feeding policies to accommodate patients on BTF.

摘要

目的

医疗服务提供者(HCPs)报告称,对混合 blenderized 管饲(BTF)作为商业配方奶(CF)喂养替代品的兴趣增加,尤其是在接受管饲的儿童家庭中。本研究的目的是探讨家长报告的其子女使用 CF 和 BTF 的经历。

设计

采用便利抽样的前瞻性描述性研究。

设置/研究对象:在线管饲支持小组中接受管饲儿童的家长(n = 433)完成了一项电子调查,以比较他们接受管饲的子女使用 CF 和 BTF 的经历。

结果

样本中使用 CF(50.5%)和 BTF(49.5%)的家长人数均衡。家长选择 BTF 的原因包括希望提供天然食物(20.2%)、减轻管饲不耐受症状(19.7%)、提供家庭餐食(12.2%)、增加经口摄入量(10.8%)、解决过敏问题(5.3%)或因为他们不喜欢配方奶(19.7%)。与配方奶喂养相比,家长报告称使用 BTF 时管饲不耐受症状较少,且他们的孩子更频繁地达到生长目标。使用 BTF 的家长中只有一半(49.3%)向 HCPs 咨询食谱和喂养监督。家长不使用 BTF 的主要原因包括缺乏知识(50.9%)或时间限制(20.0%)。

结论

本样本中有相当数量的家长成功地为其子女提供了全部或部分 BTF,但只有一半依赖 HCPs 的指导。BTF 的制备和供应存在很大差异。由于该患者群体独特的营养需求,使用或对 BTF 感兴趣的家长需要知识渊博且给予支持的 HCPs 提供指导和随访。HCPs 需要准备好筛查使用 BTF 或对这种替代 CF 的喂养方式感兴趣的接受管饲儿童的家庭。医疗机构需要评估其肠内喂养政策,以适应接受 BTF 的患者。

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