Baruch Ivcher School of Psychology, Interdisciplinary Center (IDC) Herzliya, Herzliya, Israel.
Qual Life Res. 2018 Feb;27(2):567-575. doi: 10.1007/s11136-017-1744-9. Epub 2017 Dec 1.
The present study developed a new measure of involvement in care of pediatric oncology patients termed the Child Involvement in Care Scale (CICS), and empirically examined the mental health consequences of involvement in care for children with cancer.
The CICS was administered to 236 children with cancer aged 8-12 who were recruited from three large hospitals in Israel. The children also completed questionnaires on their mental-health symptoms and emotional well-being. The children's parents completed measures on their child's compliance with treatment and health-related quality of life (HRQOL).
Exploratory and confirmatory factor analyses supported a 2-factor structure (knowledge and participation), representing different aspects of involvement in care. Compliance with treatment served as a mediator for the relationships between involvement in care and health-related outcomes. Involvement in care was positively associated with higher treatment compliance. In addition, treatment compliance was positively associated with HRQOL and positive emotions but negatively associated with psychiatric symptoms.
Pediatric cancer patients' involvement in the process of care is linked to better treatment compliance and mental health outcomes. Additional research is needed to examine the specific conditions and contexts in which involvement in care contributes to mental health and subjective well-being of children with cancer.
本研究开发了一种新的儿科肿瘤患者照护参与度评估工具，称为儿童照护参与度量表（CICS），并实证检验了儿童癌症患者照护参与度对其心理健康的影响。
该量表被用于评估来自以色列 3 家大型医院的 236 名 8-12 岁的癌症患儿。这些患儿还完成了心理健康症状和情绪健康的问卷。患儿的父母完成了关于孩子治疗依从性和健康相关生活质量（HRQOL）的量表。
探索性和验证性因子分析支持了 2 因素结构（知识和参与），代表了参与照护的不同方面。治疗依从性是参与照护与健康相关结果之间关系的中介因素。参与照护与更高的治疗依从性呈正相关。此外，治疗依从性与 HRQOL 和积极情绪呈正相关，与精神症状呈负相关。
儿科癌症患者在治疗过程中的参与与更好的治疗依从性和心理健康结果有关。需要进一步研究参与照护在何种特定条件和情境下有助于癌症患儿的心理健康和主观幸福感。
