A.J. Drexel Autism Institute, Drexel University, Philadelphia, PA.
Center for Autism Research and Treatment, UCLA, Los Angeles, CA.
Autism Res. 2018 Jan;11(1):16-23. doi: 10.1002/aur.1900. Epub 2017 Dec 5.
Despite recent advances, the evidence base supporting early intervention for young children with autism spectrum disorder (ASD) remains relatively sparse. The International Society for Autism Research (INSAR) recently sponsored a Special Interest Group (SIG) on Implementing and Evaluating Community-Based Early Intervention. Across three meetings, in 2015, 2016, and 2017, conveners of this SIG engaged >200 members to identify knowledge gaps and research priorities for moving the field forward. Here, we summarize the perspectives that emerged from group discussion at the SIG meetings as represented by scholars working actively in the field. Despite encouraging progress, critical gaps and research priorities were identified across all the stages of intervention development and testing from conceptualization to community implementation. Key issues include the need for (a) formal theories to guide early intervention development, evaluation, and implementation; and alignment of intervention goals with scientific knowledge and societal changes that have occurred in the decades since interventions were originally developed; (b) increased focus on feasibility of treatment procedures and alignment with stakeholder values during pilot evaluations; (c) use of research designs that allow for comparisons of different interventions and formats, analyses of active ingredients of treatment, and identification of moderators and mediators of outcome; (d) use of community-partnered participatory research to guide adaptation of intervention models to community settings; (e) inclusion of constructs related to implementation processes and outcomes in treatment trials and; (f) an iterative approach to the progression of knowledge from intervention development to implementation. Autism Res 2018, 11: 16-23. © 2017 International Society for Autism Research, Wiley Periodicals, Inc.
In this article, we summarize the themes discussed at the INSAR Special Interest Group (SIG) on Implementing and Evaluating Community-Based Early Intervention. Priorities for moving the field forward identified in the SIG included the need for (a) formal theories to guide the development and evaluation of interventions, (b) pilot evaluations that investigate feasibility and acceptability of interventions, (c) methodologies that allow us to determine for whom different interventions bring most benefit and why this is so, (d) strategies to include community members and other stakeholders in the process of developing and evaluating interventions, and (e) understanding of factors that make interventions more likely to be adopted and successfully implemented in the real world.
尽管最近取得了进展，但支持自闭症谱系障碍（ASD）幼儿早期干预的证据基础仍然相对较少。自闭症研究国际协会（INSAR）最近赞助了一个专门研究社区为基础的早期干预的实施和评估的特别兴趣小组（SIG）。在 2015 年、2016 年和 2017 年的三次会议上，该 SIG 的召集人让 200 多名成员参与进来，以确定推动该领域发展的知识空白和研究重点。在这里，我们总结了特别兴趣小组成员在小组会议上讨论的观点，这些观点代表了积极参与该领域的学者的观点。尽管取得了令人鼓舞的进展，但在干预措施的发展和测试的所有阶段，从概念化到社区实施，都确定了关键差距和研究重点。关键问题包括：（a）需要正式理论来指导早期干预的发展、评估和实施；以及干预目标与科学知识以及干预措施最初开发以来几十年中社会变化的一致性；（b）在试点评估中更加关注治疗程序的可行性以及与利益相关者价值观的一致性；（c）使用允许比较不同干预措施和格式、分析治疗的有效成分以及确定结果的调节因素和中介因素的研究设计；（d）使用社区合作伙伴参与式研究来指导干预模型适应社区环境；（e）将与实施过程和结果相关的构建纳入治疗试验中；以及（f）采用迭代方法从干预措施的发展到实施推进知识的发展。自闭症研究 2018，11：16-23。© 2017 自闭症研究国际协会，威利期刊，公司。
在本文中，我们总结了 INSAR 特别兴趣小组（SIG）关于实施和评估社区为基础的早期干预的讨论主题。在 SIG 中确定的推动该领域发展的优先事项包括：（a）需要正式理论来指导干预措施的发展和评估，（b）试点评估，以调查干预措施的可行性和可接受性，（c）允许我们确定不同干预措施最适合谁以及为什么适合的方法，（d）让社区成员和其他利益相关者参与到干预措施的制定和评估过程中的策略，以及（e）了解使干预措施更有可能在现实世界中被采用和成功实施的因素。
