Chiarini M, Di Simone E, Scafuro C, Auddino F, Fabbri M, Delli Poggi A, Catanzaro S, Giannetta N, Di Muzio M
Dipartimento di Sanità Pubblica e Malattie Infettive, Sapienza Università di Roma.
Dottorando di Ricerca in Scienze Infermieristiche, Università degli studi di Roma "Tor Vergata".
Clin Ter. 2017 Nov-Dec;168(6):e401-e405. doi: 10.7417/CT.2017.2042.
Crohn's Disease (CD) has an incidence on the physical and psychological autonomy of the patient, such as to alter their daily life. The impact of the disease on the daily life of the patients is related to the symptoms and complications of the disease. Patient autonomy and participation in social and work life are the goals that nurses must reach for patients with CD to improve their quality of life.
To measure the perception of the health of people with a diagnosis of CD.
Review of the literature on PubMed, and internet sites. Administration on the web of the standardised questionnaire Short Form Health Survey (SF-12).
A total of 228 patients with CD completed valid questionnaires and were enrolled. The SF-12 questionnaire scores make it possible to build a physical health index (PCS) with a median value of 36,10 (min 33,8; max 42,4) and mental health index (MCS) with a median value of 36,04 (min 28.5; max 38,4). There were statistically significant data related to the achievement of the degree with median 41.9 (min 35,1; max 48,4) compared to non-graduates with a p<0.001 and in relation to the employment level (median 37.9 min/max 34,7/46,7) compared to unemployed and inactive with a p = 0.03.
Despite the inevitable complications of the disease (intestinal and extra-intestinal symptoms), most of our sample did not exhibit significant physical limitations (surgical intervention, stomach packaging which generally causes a decrease in libido in both male and female patients ). The nurse cares for a patient with CD must have not only technical skills and specialist skills, but a holistic vision of the patient. Despite some findings in this study, this research orientation deserves more attention.
克罗恩病（CD）会对患者的身体和心理自主能力产生影响，进而改变他们的日常生活。该疾病对患者日常生活的影响与疾病的症状和并发症相关。患者的自主能力以及参与社交和工作生活是护士必须为克罗恩病患者实现的目标，以提高他们的生活质量。
测量确诊为克罗恩病患者的健康认知情况。
检索PubMed及互联网上的文献。在网络上发放标准化问卷简短健康调查问卷（SF - 12）。
共有228名克罗恩病患者完成有效问卷并被纳入研究。SF - 12问卷得分可构建身体健 康指数（PCS），中位数为36.10（最小值33.8；最大值42.4），以及心理健康指数（MCS），中位数为36.04（最小值28.5；最大值38.4）。与非毕业生相比，学历程度方面有统计学显著差异，中位数为41.9（最小值35.1；最大值48.4），p<0.001；与失业和无业者相比，就业水平方面有统计学显著差异（中位数37.9，最小值/最大值34.7/46.7），p = 0.03。
尽管该疾病存在不可避免的并发症（肠道和肠道外症状），但我们的大多数样本并未表现出明显的身体限制（手术干预、胃造瘘术，这通常会导致男性和女性患者性欲下降）。护理克罗恩病患者的护士不仅必须具备技术技能和专业技能，还需对患者有整体的认识。尽管本研究有一些发现，但这种研究方向值得更多关注。
