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波多黎各癌症患者及幸存者的心理社会支持的重要性与满意度:性别、健康状况及生活质量关联

Importance of and Satisfaction with Psychosocial Support among Cancer Patients and Survivors in Puerto Rico: Gender, Health Status, and Quality of Life Associations.

作者信息

Castro Eida M, Asencio Gloria, Quinn Gwendolyn P, Brandon Thomas, Gwede Clement K, Vadaparampil Susan, Simmons Vani, McIntyre Jessica, Jiménez Julio

机构信息

School of Behavioral and Brain Sciences, Ponce Health Sciences University, Ponce Research Institute; Department of Psychiatry, Ponce Health Sciences University, Ponce Research Institute.

School of Behavioral and Brain Sciences, Ponce Health Sciences University, Ponce Research Institute.

出版信息

P R Health Sci J. 2017 Dec;36(4):205-211.

PMID:29220064
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC5859307/
Abstract

OBJECTIVE

To assess needs perceptions regarding the importance of and satisfaction with psychosocial support among cancer patients and survivors in Puerto Rico.

METHODS

A cross-sectional study was conducted in 181 participants (70 men and 111 women) who were either undergoing cancer treatment (patients) or had completed cancer treatment (survivors). Participants completed a sociodemographic and clinical characteristics questionnaire, and the Psychosocial Needs Inventory (PNI).

RESULTS

The participants reported having or having had prostate (36%) or breast (32%) cancer or some other cancer type (32%). Of the 149 participants reporting cancer type, 130 were classified as having a high perceived level of health and quality of life, and 19 were classified as having a low perceived level of health and quality of life. In terms of perceived needs, the highest level of importance were assigned to the Support Network (e.g. family, friends, neighbors, care professionals; M = 2.88, SD = 0.43) and Health Professional (e.g., patient-health professional relationship, etc.; M = 2.80, SD = 0.50) categories, and the Emotional and Spiritual category was given the lowest importance (e.g., help managing negative emotions and spiritual counseling, etc.; M = 2.62, SD = 0.66). These perceptions varied by gender, perceived health status, and date of diagnosis. Women assigned more importance to the Health Professional and Information categories.

CONCLUSION

The results reflect the importance of considering psychosocial needs when providing psychosocial support to cancer patients and survivors. These findings are anticipated to inform services provided by psychosocial oncology support programs in Puerto Rico.

摘要

目的

评估波多黎各癌症患者及幸存者对心理社会支持的重要性和满意度的需求认知。

方法

对181名参与者(70名男性和111名女性)进行了一项横断面研究,这些参与者要么正在接受癌症治疗(患者),要么已经完成癌症治疗(幸存者)。参与者完成了一份社会人口统计学和临床特征问卷,以及心理社会需求量表(PNI)。

结果

参与者报告患有或曾患有前列腺癌(36%)、乳腺癌(32%)或其他某种癌症类型(32%)。在报告癌症类型的149名参与者中,130名被归类为健康和生活质量感知水平较高,19名被归类为健康和生活质量感知水平较低。在感知需求方面,支持网络(如家人、朋友、邻居、护理专业人员;M = 2.88,标准差 = 0.43)和健康专业人员(如患者与健康专业人员的关系等;M = 2.80,标准差 = 0.50)类别被认为最重要,而情感和精神类别被认为最不重要(如帮助管理负面情绪和精神咨询等;M = 2.62,标准差 = 0.66)。这些认知因性别、感知健康状况和诊断日期而异。女性更重视健康专业人员和信息类别。

结论

结果反映了在为癌症患者和幸存者提供心理社会支持时考虑心理社会需求的重要性。这些发现预计将为波多黎各心理肿瘤学支持项目提供的服务提供参考。

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