SHARE-Centre for Resilience in Healthcare, Faculty of Health Sciences, University of Stavanger, Stavanger, Norway.
Department of Psychiatry, Stavanger University Hospital, Stavanger, Norway.
BMJ Open. 2017 Dec 21;7(12):e018800. doi: 10.1136/bmjopen-2017-018800.
User involvement has become a growing importance in healthcare. The United Nations state that adolescents have a right to be heard, and user involvement in healthcare is a legal right in many countries. Some research provides an insight into the field of user involvement in somatic and mental healthcare for adults, but little is known about user involvement in adolescents' mental healthcare, and no overview of the existing research evidence exists.
The aim of this systematic review is to provide an overview of existing research reporting on experiences with and the effectiveness and safety issues associated with user involvement for adolescents' mental healthcare at the individual and organisational level. A systematic literature search and assessment of published research in the field of user involvement in adolescents' mental healthcare will be carried out. Established guidelines will be used for data extraction (Cochrane Collaboration guidelines, Strengthening the Reporting of Observational studies in Epidemiology and Critical Appraisal Skills Programme (CASP)), critical appraisal (Cochrane Collaboration guidelines and Pragmatic-Explanatory Continuum Indicator Summary) and reporting of results (Preferred Reporting Items for Systematic reviews and Meta-Analyses, Consolidated Standards of Reporting Trials and CASP). Confidence in the research evidence will be assessed using the Grading of Recommendations Assessment, Development and Evaluation approach. Adolescents are included as coresearchers for the planning and carrying out of this systematic review. This systematic review will provide an overview of the existing research literature and thereby fill a knowledge gap. It may provide various stakeholders, including decision-makers, professionals, individuals and their families, with an overview of existing knowledge in an underexplored field of research.
Ethics approval is not required for this systematic review as we are not collecting primary data. The results will be published in a peer-reviewed journal and at conference presentations and will be shared with stakeholder groups.
用户参与在医疗保健领域变得越来越重要。联合国规定，青少年有权发表意见，并且在许多国家，用户参与医疗保健是一项合法权利。一些研究深入探讨了成人躯体和心理健康护理领域的用户参与问题，但对于青少年心理健康护理中的用户参与知之甚少，也没有关于现有研究证据的概述。
本系统评价的目的是概述现有的研究报告，这些报告涉及青少年心理健康护理中与个人和组织层面的用户参与相关的经验、效果和安全问题。将对青少年心理健康护理领域中用户参与的现有研究进行系统文献检索和评估。将使用既定指南进行数据提取（Cochrane 协作指南、观察性研究的加强报告标准和批判性评估技能计划 (CASP)）、批判性评估（Cochrane 协作指南和实用-解释连续性指标摘要）以及结果报告（系统评价和 Meta 分析的首选报告项目、临床试验的统一报告标准和 CASP）。使用推荐评估、制定和评价方法来评估研究证据的可信度。青少年将作为核心研究人员参与本系统评价的规划和实施。本系统评价将提供现有研究文献的概述，从而填补知识空白。它可以为决策者、专业人员、个人及其家属等各种利益相关者提供一个在研究领域尚未充分探索的现有知识概述。
由于本系统评价不收集原始数据，因此不需要伦理批准。结果将在同行评议的期刊上发表，并在会议上展示，并与利益相关者团体分享。
