[家庭与门诊人工营养（NADYA）小组报告。2018年西班牙的家庭肠外营养]

[Home and Ambulatory Artificial Nutrition (NADYA) Group Report. Home parenteral nutrition in Spain, 2018].

作者信息

Wanden-Berghe Lozano Carmina, Cuerda Compes Cristina, Maíz Jiménez María, Pereira Cunill José Luis, Ramos Boluda Esther, Gómez Candela Carmen, Virgili Casas María Nuria, Burgos Peláez Rosa, de Luis Román Daniel A, Penacho Lázaro Mª Ángeles, Sánchez Martos Eva Ángeles, Martínez Faedo Ceferino, Díaz Guardiola Patricia, Álvarez Hernández Julia, Zugasti Murillo Ana, Campos Martín Cristina, Sanz Paris Alejandro, Martín Fontalba María de Los Ángeles, Lobo-Támer Gabriela, Matía Martín María Pilar, Carabaña Pérez Fátima, Martín Folgueras Tomás, Martín Palmero M ª Ángela, Luengo Pérez Luis Miguel, Sánchez-Vilar Burdiel Olga, Martínez Costa Cecilia, Tejera Cristina, Martínez Ramírez María José, García Delgado Yaiza, Ponce González Miguel Ángel, Mauri Roca Sílvia, García Zafra María Victoria, Germán Díaz Marta, Romero Victoria, Molina Baeza Begoña, Gonzalo Marín Montserrat, Irles Rocamora José Antonio, Sánchez Sánchez Rebeca, Apezetxea Celaya Antxón, Joaquín Ortiz Clara, Suárez Llanos José Pablo, Pintor de la Maza Begoña, Leyes García Pere, Gil Martinez M ª Carmen, Carrera Santaliestra María José

机构信息

Hospital General Universitario de Alicante. Fundación Para el Fomento de la Investigación Sanitaria y Biomédica (ISABIAL-FISABIO).

Hospital General Universitario Gregorio Marañón.

出版信息

Nutr Hosp. 2020 Apr 16;37(2):403-407. doi: 10.20960/nh.02976.

DOI:10.20960/nh.02976

PMID:32124618

Abstract

Aim: to communicate home parenteral nutrition (HPN) data obtained from the HPN registry of the NADYA-SENPE group (www.nadya-senpe.com) for the year 2018 Material and methods: descriptive analysis of the data collected from adult and pediatric patients with HPN in the NADYA-SENPE group registry from January 1st, 2018 to December 31st, 2018. Results: there were 278 patients from 45 Spanish hospitals (54.7% women), 23 children and 255 adults, which represent a prevalence rate of 5.95 patients/million inhabitants/year 2018. The most frequent diagnosis in adults was "palliative cancer" (22.0%), followed by "others". In children it was Hirschsprung's disease together with necrotizing enterocolitis, with four cases (17.4%). The first indication was short bowel syndrome in both children (60.9%) and adults (35.7%). The most frequently used type of catheter was tunneled in both children (81.0%) and adults (41.1%). Ending 75 episodes, the most frequent cause was death (52.0%) and change to oral feeding (33.3%). Conclusions: the number of centers and collaborating professionals in the registry of patients receiving HPN remains stable, as well as the main indications and reasons for termination of HPN.

摘要

目的

交流从NADYA - SENPE小组（www.nadya - senpe.com）的家庭肠外营养（HPN）登记处获取的2018年数据材料与方法：对2018年1月1日至2018年12月31日在NADYA - SENPE小组登记处收集的接受HPN的成人和儿科患者的数据进行描述性分析。结果：来自45家西班牙医院的278例患者（54.7%为女性），其中23例儿童和255例成人，这代表2018年的患病率为每百万居民中有5.95例患者。成人中最常见的诊断是“姑息性癌症”（22.0%），其次是“其他”。儿童中是先天性巨结肠合并坏死性小肠结肠炎，有4例（17.4%）。首要指征在儿童（60.9%）和成人（35.7%）中均为短肠综合征。儿童（81.0%）和成人（41.1%）最常使用的导管类型均为隧道式。75次治疗结束时，最常见的原因是死亡（52.0%）和改为经口喂养（33.3%）。结论：接受HPN患者登记处的中心数量和合作专业人员数量保持稳定，HPN的主要指征和终止原因也保持稳定。