Wanden-Berghe Lozano Carmina, Pereira Cunill José Luis, Cuerda Compes Cristina, Ramos Boluda Esther, Maiz Jiménez María Irene, Gómez Candela Carmen, Virgili Casas Nuria, Burgos Peláez Rosa, Pérez de la Cruz Antonio, Penacho Lázaro M ª Ángeles, Sánchez Martos Eva Ángeles, De Luis Román Daniel Antonio, Martínez Faedo Ceferino, Martín Fontalba María de Los Ángeles, Álvarez Hernández Julia, Matía Martín Pilar, Díaz Guardiola Patricia, Carabaña Pérez Fátima, Sanz París Alejandro, Garde Orbaiz Carmen, Sánchez-Vilar Burdiel Olga, Martín Folgueras Tomás, Martín Palmero M ª Ángela, Luengo Pérez Luis Miguel, Zugasti Murillo Ana, Martínez Costa Cecilia, Suárez Llanos José Pablo, Tejera Pérez Cristina, Irles Rocamora José Antonio, Arraiza Irigoyen Carmen, García Delgado Yaiza, Campos Martín Cristina, Ponce González Miguel Ángel, Mauri Roca Silvia, García Zafra M ª Victoria, Morán López Jesús M, Molina Baeza Begoña, Gonzalo Marín Montserrat, Joaquín Ortiz Clara, Pintor de la Maza Begoña, Gil Martínez M ª Carmen, Carrera Santaliestra María José, Forga Visa M ª Del Talló, Apezetxea Celaya Antxón, Sánchez Sánchez Rebeca, Urgeles Planella Juan Ramón
1. Hospital General Universitario de Alicante, Alicante, España. 2. Fundación para el Fomento de la Investigación Sanitaria y Biomédica (ISABIAL-FISABIO), Alicante, España..
Nutr Hosp. 2018 Dec 3;35(6):1491-1496. doi: 10.20960/nh.2364.
to communicate HPN data obtained from the HPN registry of the NADYA-SENPE group (www.nadya-senpe.com) for the year 2017.
descriptive analysis of the data collected from adult and pediatric patients with HPN in the NADYA-SENPE group registry from January 1st, 2017 to December 31st, 2017.
there were 308 patients from 45 Spanish hospitals (54.5% women), 38 children and 270 adults, with 3,012 episodes, which represent a prevalence rate of 6.61 patients/million inhabitants/year 2017. The most frequent diagnosis in adults was "palliative cancer" (25.6%), followed by "others". In children, it was Hirschsprung's disease with six cases (15.8%). The first indication was short bowel syndrome in both children (55.3%) and adults (33.7%). The most frequently used type of catheter was tunneled in both children (73.4%) and adults (38.2%). Ending 81 episodes, the most frequent cause was death (62.9%) and transition to oral feeding (34.7%).
the progressive increase of collaborating centers and professionals in the registry of patients receiving NPD is maintained. The main indications of HPN and the motive for ending have remained stable.
交流从NADYA-SENPE小组（www.nadya-senpe.com）的家庭肠内营养（HPN）登记处获取的2017年数据。
对2017年1月1日至2017年12月31日期间NADYA-SENPE小组登记处中成年和儿科HPN患者收集的数据进行描述性分析。
来自45家西班牙医院的308例患者（54.5%为女性），其中38例儿童，270例成人，共发生3012次事件，这代表2017年的患病率为每百万居民中有6.61例患者。成人中最常见的诊断是“姑息性癌症”（25.6%），其次是“其他”。儿童中，是先天性巨结肠症，有6例（15.8%）。首要指征在儿童（55.3%）和成人（33.7%）中均为短肠综合征。儿童（73.4%）和成人（38.2%）中最常使用的导管类型均为隧道式。在81次事件结束时，最常见的原因是死亡（62.9%）和转为经口喂养（34.7%）。
接受非经口营养支持（NPD）患者登记处中协作中心和专业人员数量持续稳步增加。HPN的主要指征和结束事件的原因保持稳定。
