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Developing Navigation Competencies to Care for Older Rural Adults with Advanced Illness.培养照顾患有晚期疾病的农村老年人的导航能力。
Can J Aging. 2016 Jun;35(2):206-14. doi: 10.1017/S0714980816000131. Epub 2016 Apr 19.
2
Short-term and long-term effects of a psycho-educational group intervention for family caregivers in palliative home care - results from a randomized control trial.一项针对姑息性家庭护理中家庭照顾者的心理教育小组干预的短期和长期效果——一项随机对照试验的结果
Psychooncology. 2016 Jul;25(7):795-802. doi: 10.1002/pon.4004. Epub 2015 Oct 9.
3
Cultural influences on palliative family caregiving: service recommendations specific to the Vietnamese in Canada.文化对姑息治疗家庭护理的影响:针对加拿大越南裔的服务建议
BMC Res Notes. 2015 Jun 30;8:280. doi: 10.1186/s13104-015-1252-3.
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The development and evaluation of a multimedia resource for family carers of patients receiving palliative care: a consumer-led project.为接受姑息治疗患者的家庭护理者开发和评估一种多媒体资源:一个由消费者主导的项目。
Palliat Support Care. 2015 Jun;13(3):417-23. doi: 10.1017/S1478951513001090.
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Delivering and participating in a psycho-educational intervention for family caregivers during palliative home care: a qualitative study from the perspectives of health professionals and family caregivers.在姑息家庭护理期间为家庭照顾者提供并参与心理教育干预:一项从健康专业人员和家庭照顾者视角开展的定性研究
BMC Palliat Care. 2015 Apr 24;14:16. doi: 10.1186/s12904-015-0015-1.
6
A pilot randomized, controlled trial of the effectiveness of a psychoeducational intervention on family caregivers of patients with advanced cancer.一项关于心理教育干预对晚期癌症患者家庭照顾者有效性的试点随机对照试验。
Oncol Nurs Forum. 2015 Mar;42(2):E63-72. doi: 10.1188/15.ONF.E63-E72.
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"It's alright to ask for help": findings from a qualitative study exploring the information and support needs of family carers at the end of life.“寻求帮助是可以的”:一项定性研究的结果,该研究探讨了生命末期家庭照顾者的信息和支持需求。
BMC Palliat Care. 2014 Apr 17;13:22. doi: 10.1186/1472-684X-13-22. eCollection 2014.
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What family caregivers learn when providing care at the end of life: a qualitative secondary analysis of multiple datasets.家庭照顾者在临终关怀时所学到的:对多个数据集的定性二次分析
Palliat Support Care. 2015 Jun;13(3):425-33. doi: 10.1017/S1478951513001168. Epub 2014 Feb 13.
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Home-based palliative care: a systematic literature review of the self-reported unmet needs of patients and carers.居家姑息治疗:对患者及照护者自我报告的未满足需求的系统文献综述
Palliat Med. 2014 May;28(5):391-402. doi: 10.1177/0269216313511141. Epub 2013 Nov 29.
10
Online support for employed informal caregivers: psychosocial outcomes.为受雇的非正式照料者提供的在线支持:心理社会结局
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对经历绝症的加拿大人的护理人员的教育、培训和指导。

Education, Training, and Mentorship of Caregivers of Canadians Experiencing a Life-Limiting Illness.

机构信息

Gender, Work, and Health, School of Geography and Earth Sciences, McMaster University , Hamilton, Ontario, Canada .

出版信息

J Palliat Med. 2018 Jan;21(S1):S45-S49. doi: 10.1089/jpm.2017.0393.

DOI:10.1089/jpm.2017.0393
PMID:29283872
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC5733737/
Abstract

BACKGROUND

Research suggests that caregiver preparedness is essential to minimizing the negative impacts of caregiving. Not being prepared is associated with fear, anxiety, stress, and feelings of insufficiency/uncertainty specific to the caregiver role.

OBJECTIVE

To determine what resources are required to ensure adequate education, training, and mentorship for caregivers of Canadians experiencing a life-limiting illness.

DESIGN

Informed by the Ispos Reid survey, the methods for this article involved a rapid literature review that addressed caregiver experiences, needs and issues as they related to health, quality of life, and well-being.

RESULTS

Given the burden of care, caregiver education, training, and mentorship are suggested to be best met through the palliative navigator model, wherein the patient-caregiver dyad is recognized as an integrated unit of care.

CONCLUSIONS

The palliative navigator approach is a key role in the education, training, and mentorship of caregivers.

摘要

背景

研究表明,照顾者的准备对于将照顾的负面影响降到最低至关重要。没有准备好会导致恐惧、焦虑、压力以及对照顾者角色的不足/不确定感。

目的

确定需要哪些资源来确保为经历绝症的加拿大人的照顾者提供足够的教育、培训和指导。

设计

受 Ipsos Reid 调查的启发,本文的方法包括一项快速文献综述,其中涉及照顾者的经历、需求和问题,这些问题与健康、生活质量和幸福感有关。

结果

鉴于照顾的负担,建议通过姑息治疗导航员模式来满足照顾者的教育、培训和指导需求,在这种模式中,患者-照顾者二人组被视为一个整体的护理单元。

结论

姑息治疗导航员的方法是对照顾者进行教育、培训和指导的关键角色。