Brookdale Department of Geriatrics and Palliative Medicine, Icahn School of Medicine at Mount Sinai , New York, New York.
J Palliat Med. 2018 Jan;21(S1):S63-S75. doi: 10.1089/jpm.2017.0431.
To identify barrier to achieving universal access to high quality palliative care in Canada, review published national strategies and frameworks to promote palliative care, examine key aspects that have been linked to successful outcomes, and make recommendations for Canada.
In 2014, the World Health Organization called on members to develop and implement policies to ensure palliative care is integrated into national health services.
Rapid review supplemented by the author's personal files, outreach to colleagues within the international palliative care community, review of European Association for Palliative Care publications, and a subsequent search of the table of contents of the major palliative care journals.
Frameworks were found for 10 countries ranging from detailed and comprehensive multi-year strategies to more general approaches including laws guaranteeing access to palliative care services for "dying" patients or recommendations for the development of clinical infrastructure. Few formal evaluations were found minimal comparative data exist regarding the quality of care, access to palliative care services, timing of access in the disease trajectory, and patient and family satisfaction with care. Factors that appear to be associated with success include: 1) input and early involvement of senior policy makers; 2) comprehensive strategies that address major barriers to universal access and that involve the key constituents; 3) a focus on enhancing the evidence base and developing a national system of quality reporting; and 4) substantial and sustained government investment.
Comprehensive national strategies appear to improve access to high quality palliative care for persons with serious illness and their families. Such strategies require sustained government funding and address barriers related to infrastructure, professional and public education, workforce shortages, and an inadequate evidence base.
确定在加拿大实现普及高质量姑息治疗的障碍,审查已发布的促进姑息治疗的国家战略和框架,研究与成功成果相关的关键方面,并为加拿大提出建议。
2014 年,世界卫生组织呼吁各成员国制定和实施政策,确保将姑息治疗纳入国家卫生服务。
快速审查,作者个人档案补充,向国际姑息治疗社区的同事伸出援手,审查欧洲姑息治疗协会的出版物,以及随后对主要姑息治疗期刊的目录进行搜索。
为 10 个国家找到了框架,从详细和全面的多年战略到更一般的方法,包括保障“临终”患者获得姑息治疗服务的法律或为发展临床基础设施提出建议。几乎没有发现正式评估,关于护理质量、姑息治疗服务的可及性、在疾病进程中获得治疗的时机以及患者和家庭对护理的满意度,只有很少的比较数据。似乎与成功相关的因素包括:1)高级政策制定者的投入和早期参与;2)全面的策略,解决普及障碍,并涉及关键利益相关者;3)专注于加强证据基础和制定国家质量报告系统;以及 4)大量和持续的政府投资。
全面的国家战略似乎改善了患有严重疾病的人和他们的家庭获得高质量姑息治疗的机会。这些战略需要持续的政府资金,并解决与基础设施、专业和公众教育、劳动力短缺以及证据基础不足相关的障碍。