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马来西亚脊髓损伤患者驾车的特征及其障碍:一项横断面研究。

Characteristics of persons with spinal cord injury who drive in Malaysia and its barriers: a cross sectional study.

作者信息

Lee Richard Chee Houw, Hasnan Nazirah, Engkasan Julia Patrick

机构信息

Department of Rehabilitation Medicine, Faculty of Medicine, University of Malaya, 50603, Kuala Lumpur, Malaysia.

Department of Rehabilitation Medicine, University of Malaya Medical Centre, 59100, Kuala Lumpur, Malaysia.

出版信息

Spinal Cord. 2018 Apr;56(4):341-346. doi: 10.1038/s41393-017-0034-2. Epub 2017 Dec 29.

Abstract

STUDY DESIGN

Cross sectional study.

OBJECTIVES

To determine the prevalence, characteristics of and barriers to driving among persons with a spinal cord injury (SCI).

SETTING

SCI Rehabilitation Clinic, University Malaya Medical Centre (UMMC).

METHODS

This is a questionnaire-based study on persons with SCI who attended the UMMC SCI Rehabilitation Clinic between June 2015 and November 2016. The questionnaire comprised demographic data, clinical characteristics, driving variables, Spinal Cord Independence Measure III, WHOQOL-BREF, and Craig Handicap Assessment and Reporting Technique Short Form. Malaysians aged greater than 18 years old with any etiology and levels of SCI, had no other physical disabilities and not suffering from progressive illness were recruited. A single investigator administered the questionnaire via face-to-face interviews.

RESULTS

A total of 160 participants were included in this study. Overall, 37% of persons with SCI drove and owned a modified vehicle. Almost half of persons with paraplegia (47%) drove, but only 12% of tetraplegia did. A majority (93%) of those who drove aged below 60 years, and had higher level of independence in activity of daily living. More drivers (81%) compared to non-drivers (24%) were employed; drivers also reported better community reintegration and quality of life. Three commonest barriers to driving included medical reasons (38%), fear and lack of confidence (17%), and inability to afford vehicle modifications (13%).

CONCLUSIONS

The percentage of persons with SCI driving post injury is low. Based on the findings of this study, more efforts are needed to motivate and facilitate persons with SCI to drive.

摘要

研究设计

横断面研究。

目的

确定脊髓损伤(SCI)患者的驾驶患病率、特征及障碍。

地点

马来亚大学医学中心(UMMC)的SCI康复诊所。

方法

这是一项基于问卷调查的研究,研究对象为2015年6月至2016年11月期间在UMMC的SCI康复诊所就诊的SCI患者。问卷包括人口统计学数据、临床特征、驾驶变量、脊髓独立测量量表III、世界卫生组织生活质量简表(WHOQOL - BREF)以及克雷格残疾评估与报告技术简表。招募年龄大于18岁、病因和SCI水平不限、无其他身体残疾且未患进行性疾病的马来西亚人。由一名调查员通过面对面访谈的方式发放问卷。

结果

本研究共纳入160名参与者。总体而言,37%的SCI患者开车且拥有一辆改装车。几乎一半的截瘫患者(47%)开车,但四肢瘫患者中只有12%开车。大多数开车的患者(93%)年龄在60岁以下,且在日常生活活动中独立性较高。与非驾驶者(24%)相比,更多驾驶者(81%)有工作;驾驶者还报告称在社区融入和生活质量方面更好。驾驶的三个最常见障碍包括医疗原因(38%)、恐惧和缺乏信心(17%)以及无力承担车辆改装费用(13%)。

结论

SCI患者受伤后开车的比例较低。基于本研究结果,需要做出更多努力来激励和帮助SCI患者开车。

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