Rosiak Katarzyna, Zagożdżon Paweł
Zakład Higieny i Epidemiologii, Gdański Uniwersytet Medyczny.
Psychiatr Pol. 2017 Oct 29;51(5):923-935. doi: 10.12740/PP/64709.
Quality of life and needforsocial support in persons diagnosed with multiple sclerosis (MS) are to a large extent determined by the degree of their disability. The aim of the study was to analyze an association between specific forms of MS, subjectively perceived quality of life and social support.
The study included subjects with established diagnosis of MS, treated at rehabilitation centers, hospitals and in a home setting, as well as the members of patient organizations. After being informed about objectives of the study, type of included tasks and way to complete them, each participant was handed out a set of questionnaires: Berlin Social Support Scales (Łuszczyńska, Kowalska, Schwarzer, Schulz), Quality of Life Questionnaire (WHOQOLBREF), as well as a survey developed specifically for the purposes of this project. The results were subjected to statistical analysis with STATA 12 package.
The study included a total of 110 persons (67 women and 43 men). Quality of life overall, as well in physical, psychological, social relationships and environmental health domains, turned out to be particularly important in patients with primary-progressive MS. Irrespective of MS type, social support overall did not play a significant role on univariate analysis. However, subgroup analysis according to sex demonstrated that men with MS received social support four times less often than women.
Quality of life in individuals with primary-progressive MS is significantly lower than in patients presenting with other types of this disease. Men with MS are more likely to present with worse scores for social support overall. They are less likely both to acknowledge the need for support and to realize the availability of support they actually need.
被诊断为多发性硬化症（MS）的患者的生活质量和社会支持需求在很大程度上取决于其残疾程度。本研究的目的是分析MS的特定形式、主观感知的生活质量和社会支持之间的关联。
该研究纳入了在康复中心、医院和家庭环境中接受治疗的已确诊MS患者，以及患者组织的成员。在了解研究目的、所包含任务的类型和完成方式后，向每位参与者发放了一套问卷：柏林社会支持量表（卢什琴斯卡、科瓦尔斯卡、施瓦泽、舒尔茨）、生活质量问卷（WHOQOLBREF），以及专门为本项目目的编制的一份调查问卷。结果使用STATA 12软件包进行统计分析。
该研究共纳入110人（67名女性和43名男性）。结果表明，总体生活质量以及身体、心理、社会关系和环境健康领域的生活质量在原发进展型MS患者中尤为重要。无论MS类型如何，单因素分析显示总体社会支持并未发挥显著作用。然而，按性别进行的亚组分析表明，患有MS的男性获得社会支持的频率比女性低四倍。
原发进展型MS患者的生活质量明显低于患有其他类型该病的患者。患有MS的男性总体社会支持得分更可能较差。他们既不太可能承认需要支持，也不太可能意识到他们实际所需支持的可获得性。
