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Health and LifeDomain ResearchPriorities in Children, Adolescents and Young Adults With Pediatric-Onset Spinal Cord Injury: A National Cross-Sectional Survey in England.儿童、青少年和青年期起病脊髓损伤患者的健康和生命领域研究重点:英格兰全国横断面调查。
Top Spinal Cord Inj Rehabil. 2022 Spring;28(2):91-110. doi: 10.46292/sci21-00053. Epub 2022 Apr 12.
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Experience of Primary Care Nurses of Sexuality Care for Persons with Disabilities: A Qualitative Study.基层护理护士为残疾人提供性健康护理的经验:一项定性研究。
Healthcare (Basel). 2021 Dec 9;9(12):1711. doi: 10.3390/healthcare9121711.
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本文引用的文献

1
Assessing patterns of participation and enjoyment in children with spinal cord injury.评估脊髓损伤儿童的参与和享受模式。
Dev Med Child Neurol. 2010 May;52(5):468-74. doi: 10.1111/j.1469-8749.2009.03552.x. Epub 2009 Dec 23.
2
Recommendations for discussing sexuality after spinal cord injury/dysfunction in children, adolescents, and adults.关于儿童、青少年和成人脊髓损伤/功能障碍后性问题讨论的建议。
J Spinal Cord Med. 2007;30 Suppl 1(Suppl 1):S65-70. doi: 10.1080/10790268.2007.11753971.
3
Sexuality of children and adolescents with developmental disabilities.发育障碍儿童及青少年的性特征
Pediatrics. 2006 Jul;118(1):398-403. doi: 10.1542/peds.2006-1115.
4
Recent data on pubertal milestones in United States children: the secular trend toward earlier development.美国儿童青春期发育里程碑的最新数据:发育提前的长期趋势。
Int J Androl. 2006 Feb;29(1):241-6; discussion 286-90. doi: 10.1111/j.1365-2605.2005.00575.x.
5
The evaluation of sexual abuse in children.儿童性虐待的评估
Pediatrics. 2005 Aug;116(2):506-12. doi: 10.1542/peds.2005-1336.
6
Sexual behaviors of physically disabled adolescents in the United States.美国身体残疾青少年的性行为
J Adolesc Health. 2002 Jul;31(1):48-58. doi: 10.1016/s1054-139x(01)00400-1.
7
Emerging adulthood. A theory of development from the late teens through the twenties.新兴成年期。一种从青少年晚期到二十多岁的发展理论。
Am Psychol. 2000 May;55(5):469-80.

小儿脊髓损伤中的性征问题

Sexuality in Pediatric Spinal Cord Injury.

作者信息

Papadakis Jaclyn Lennon, Zebracki Kathy, Chlan Kathleen M, Vogel Lawrence C

机构信息

Loyola University Chicago, Chicago, Illinois.

Shriners Hospitals for Children, Chicago, Illinois.

出版信息

Top Spinal Cord Inj Rehabil. 2017 Winter;23(1):42-48. doi: 10.1310/sci2301-42.

DOI:10.1310/sci2301-42
PMID:29339876
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC5340508/
Abstract

Sexual development and sexuality in youth with pediatric spinal cord injury (SCI) are critical areas clinicians must be aware of and discuss when working with youth and their families. In addition to the general sexuality issues and challenges of adolescence and adult development, youth with SCI face unique physical and psychosocial issues. The goal of this article is to provide a developmentally based discussion of sexuality in individuals with SCI from infancy through emerging adulthood. An overview of psychosocial issues related to sexual development and sexuality are presented for each stage of sexual development along with recommendations for clinical practice, including patient and caregiver education and counseling. In order to establish expectations for youth with SCI, long-term outcomes related to sexuality and fertility of adults with pediatric-onset SCI are presented.

摘要

小儿脊髓损伤(SCI)青年的性发育和性行为是临床医生在与青年及其家庭合作时必须了解并讨论的关键领域。除了青春期及成年期发育中常见的性问题和挑战外,脊髓损伤青年还面临独特的身体和心理社会问题。本文旨在基于发育阶段对脊髓损伤患者从婴儿期到成年早期的性行为进行讨论。文中针对性发育的每个阶段概述了与性发育和性行为相关的心理社会问题,并给出了临床实践建议,包括对患者和照顾者的教育及咨询。为了让脊髓损伤青年建立预期,还介绍了小儿期发病的脊髓损伤成年患者在性和生育方面的长期预后情况。