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Pediatric health and life domain priorities: A national survey of people with spinal cord injury and their parents and caregivers.儿科健康和生活领域的优先事项:一项全国性调查,调查对象为脊髓损伤患者及其父母和照顾者。
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本文引用的文献

1
Evaluation of the International Spinal Cord Injury Bowel Function Basic Data Set Version 2.0 in Children and Youth With Spinal Cord Injury.评估《国际脊髓损伤肠道功能基本数据集》第二版在儿童和青少年脊髓损伤患者中的应用。
Top Spinal Cord Inj Rehabil. 2022 Winter;28(1):21-33. doi: 10.46292/sci19-00001. Epub 2021 Oct 25.
2
The International Spinal Cord Injury Pediatric Activity and Participation Basic Data Set.国际脊髓损伤儿童活动与参与基本数据集
Spinal Cord Ser Cases. 2019 Oct 31;5:91. doi: 10.1038/s41394-019-0230-8. eCollection 2019.
3
Development of the International Spinal Cord Injury/Dysfunction Education Basic Data Set.国际脊髓损伤/功能障碍教育基础数据集的开发。
Spinal Cord Ser Cases. 2019 Oct 21;5:87. doi: 10.1038/s41394-019-0229-1. eCollection 2019.
4
Clinical Practice Guideline for the Management of Asymptomatic Bacteriuria: 2019 Update by the Infectious Diseases Society of America.临床实践指南:无症状细菌尿管理 2019 年美国传染病学会更新版。
Clin Infect Dis. 2019 May 2;68(10):e83-e110. doi: 10.1093/cid/ciy1121.
5
Sexuality in Pediatric Spinal Cord Injury.小儿脊髓损伤中的性征问题
Top Spinal Cord Inj Rehabil. 2017 Winter;23(1):42-48. doi: 10.1310/sci2301-42.
6
International Spinal Cord Injury Core Data Set (version 2.0)-including standardization of reporting.国际脊髓损伤核心数据集(第2.0版)——包括报告的标准化。
Spinal Cord. 2017 Aug;55(8):759-764. doi: 10.1038/sc.2017.59. Epub 2017 May 30.
7
International Spinal Cord Injury Urinary Tract Infection Basic Data Set.国际脊髓损伤泌尿系感染基础数据集。
Spinal Cord. 2013 Sep;51(9):700-4. doi: 10.1038/sc.2013.72. Epub 2013 Jul 30.
8
Autonomic cardiovascular dysfunction and vitamin D deficiency in pediatric spinal cord injury.小儿脊髓损伤中的自主心血管功能障碍与维生素D缺乏
J Pediatr Rehabil Med. 2013;6(1):45-52. doi: 10.3233/PRM-130236.
9
Substance use in young adults with pediatric-onset spinal cord injury.青少年期起病的脊髓损伤患者的物质使用情况。
Spinal Cord. 2012 Jul;50(7):497-501. doi: 10.1038/sc.2012.8. Epub 2012 Feb 28.
10
Predicting height from arm measurements.通过手臂测量预测身高。
J Pediatr Orthop. 1993 Nov-Dec;13(6):761-5. doi: 10.1097/01241398-199311000-00014.

初级保健提供者的小儿脊髓损伤指南。

A Primary Care Provider's Guide to Pediatric Spinal Cord Injuries.

作者信息

Zebracki Kathy, Melicosta Michelle, Unser Cody, Vogel Lawrence C

机构信息

Shriners Hospitals for Children, Chicago, Illinois.

Kennedy Krieger Institute, Baltimore, Maryland.

出版信息

Top Spinal Cord Inj Rehabil. 2020 Spring;26(2):91-99. doi: 10.46292/sci2602-91.

DOI:10.46292/sci2602-91
PMID:32760187
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7384545/
Abstract

Spinal cord injury (SCI) in youth presents with unique manifestations and complications as compared to adult-onset SCI. The primary care clinician must consider the physical, physiological, cognitive, and psychological changes transpiring during childhood and adolescence. Physical changes include increasing size, weight, and bladder volume. Physiologic considerations include decreasing heart rate and increasing blood pressure with age. Cognitive issues include communication, executive functioning, and self-management skills. Lastly, psychological processes involve emotional functioning and establishment of self-identify and autonomy in the context of life with SCI.

摘要

与成人期脊髓损伤相比,青少年脊髓损伤(SCI)有独特的表现和并发症。初级保健临床医生必须考虑儿童期和青少年期发生的身体、生理、认知和心理变化。身体变化包括体型、体重增加以及膀胱容量增大。生理方面的考虑包括随着年龄增长心率降低和血压升高。认知问题包括沟通、执行功能和自我管理技能。最后,心理过程涉及情绪功能以及在脊髓损伤生活背景下自我认同和自主性的建立。