Catapano Francesca, Steinwurtzel Rochelle, Parravicini Elvira, Wool Charlotte
Department of Medical and Surgical Science, University of Bologna, Bologna, Italy.
Department of Neonatology, Columbia University Irving Medical Center, New York, NY, United States.
Front Pediatr. 2024 Sep 5;12:1425320. doi: 10.3389/fped.2024.1425320. eCollection 2024.
To better understand the experience of parents with neonates with congenital heart diseases (CHD) admitted to a neonatal intensive care unit (NICU) in order to identify challenges faced by parents and discover support strategies helpful in positive coping.
Prospective cohort study of parents of neonates with CHD. Parents completed a questionnaire with open ended questions regarding their experience and feeling during the hospitalization within one week of the child discharge from the NICU. Krippendorff's content analysis was used to examine data.
Sixty-four parents participated. Three themes were highlighted - Dialectical parental experiences, Suboptimal Parental Experiences and Positive Parental Experiences - describing the state of being and feelings that these parents face. Through this analysis, we were able to develop clinical considerations and identify coping strategies.
The understanding of parental experience and challenges when dealing with their child admitted in the NICU is crucial to identify coping strategies to promote adaptation and enhance the development of positive coping mechanisms.
为了更好地了解先天性心脏病（CHD）新生儿入住新生儿重症监护病房（NICU）时家长的经历，以便确定家长面临的挑战，并发现有助于积极应对的支持策略。
对患有CHD的新生儿家长进行前瞻性队列研究。家长在孩子从NICU出院后一周内完成一份关于他们在住院期间经历和感受的开放式问卷。采用克里彭多夫内容分析法对数据进行分析。
64位家长参与了研究。突出了三个主题——辩证的家长经历、不理想的家长经历和积极的家长经历——描述了这些家长面临的状态和感受。通过该分析，我们能够制定临床考量并确定应对策略。
了解家长在孩子入住NICU时的经历和挑战对于确定促进适应并增强积极应对机制发展的应对策略至关重要。
