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文化、康复与面部出生缺陷:国际案例研究

Culture, rehabilitation, and facial birth defects: international case studies.

作者信息

Strauss R P

出版信息

Cleft Palate J. 1985 Jan;22(1):56-62.

PMID:2937578
Abstract

Responses to birth defects are influenced by their cultural and social context. Two multicultural societies, Israel and Nigeria, are reviewed for attitudes toward birth defects. Israel is a developed society where cultural and national origin affect utilization of health services. Differences between Western Jews, Oriental Jews, and Arabs exist in their explanations of etiology and their attitudes toward rehabilitation and community participation. Nigeria is a developing nation with limited health resources. Facial birth defects are stigmatized, infanticide remains a practice, and attitudinal barriers to the development of rehabilitation resources exist. The economic, demographic, and spiritual causes of infanticide are reviewed historically. The persistence of infanticide, though illegal, is discussed relative to issues facing the response of Western medicine to seriously afflicted newborns as well as prenatal genetic diagnosis. The importance of culture as a variable in cleft lip and palate research is stressed.

摘要

对出生缺陷的反应受到其文化和社会背景的影响。本文回顾了以色列和尼日利亚这两个多元文化社会对出生缺陷的态度。以色列是一个发达社会,文化和民族出身会影响医疗服务的利用情况。西方犹太人、东方犹太人和阿拉伯人在病因解释以及对康复和社区参与的态度上存在差异。尼日利亚是一个卫生资源有限的发展中国家。面部出生缺陷会带来耻辱感,杀婴现象仍然存在,而且在康复资源发展方面存在态度上的障碍。本文从历史角度审视了杀婴现象的经济、人口和精神层面的原因。尽管杀婴是非法行为,但仍结合西医应对重症新生儿以及产前基因诊断所面临的问题进行了讨论。强调了文化作为唇腭裂研究中的一个变量的重要性。

相似文献

1
Culture, rehabilitation, and facial birth defects: international case studies.文化、康复与面部出生缺陷:国际案例研究
Cleft Palate J. 1985 Jan;22(1):56-62.
2
Prosthodontic and psychological factors in treating patients with congenital and craniofacial defects.治疗先天性和颅面缺陷患者的修复学及心理学因素
J Prosthet Dent. 2006 May;95(5):392-6. doi: 10.1016/j.prosdent.2006.03.002.
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Cultural and religious components in Nigerian parents' perceptions of the aetiology of cleft lip and palate: implications for treatment and rehabilitation.尼日利亚父母对唇腭裂病因认知中的文化和宗教因素:对治疗与康复的启示
Br J Oral Maxillofac Surg. 2007 Jun;45(4):302-5. doi: 10.1016/j.bjoms.2006.09.005. Epub 2006 Oct 23.
4
An examination of mental health services offered by cleft/craniofacial teams.
Cleft Palate J. 1987 Apr;24(2):158-62.
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[Problems of development and care of children born with selected congenital malformations: Down's syndrome, cardiopathy, cleft lip and palate, clubfoot].
Pediatr Med Chir. 1986 Mar-Apr;8(2):243-52.
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A psychosocial study of Icelandic individuals with cleft lip or cleft lip and palate.一项针对冰岛唇裂或唇腭裂患者的社会心理研究。
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The point of view of the patient: personal account from a patient who has finished the cleft lip and palate programme.患者的观点:一位完成唇腭裂治疗项目的患者的亲身讲述。
B-ENT. 2006;2 Suppl 4:27-8.
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Prenatal diagnosis of orofacial clefts, National Birth Defects Prevention Study, 1998-2004.1998 - 2004年国家出生缺陷预防研究中口面部裂的产前诊断
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Cleft lip and palate: Parental experiences of stigma, discrimination, and social/structural inequalities.
唇腭裂:父母遭受耻辱、歧视及社会/结构不平等的经历。
Ann Maxillofac Surg. 2016 Jul-Dec;6(2):195-203. doi: 10.4103/2231-0746.200336.
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Genetic studies in the Nigerian population implicate an MSX1 mutation in complex oral facial clefting disorders.针对尼日利亚人群的基因研究表明,MSX1基因突变与复杂的口腔面部裂缺陷疾病有关。
Cleft Palate Craniofac J. 2011 Nov;48(6):646-53. doi: 10.1597/10-133. Epub 2011 Jul 8.
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Syndromes, communicative disorders, and black children.综合征、交流障碍与黑人儿童。
J Natl Med Assoc. 1986 May;78(5):409-19.